title: The SWAL-QOL outcomes tool for oropharyngeal dysphagia in adults: I. Conceptual foundation and item development.
abstract: In the past two decades, noteworthy advances have been made in measuring the physiologic outcomes of dysphagia, including measurement of duration of structure and bolus movements, stasis, and penetration-aspiration. However, there is a paucity of data on health outcomes from the patients' perspective, such as quality of life and patient satisfaction. A patient-based, dysphagia-specific outcomes tool is needed to enhance information on treatment variations and treatment effectiveness. We present the conceptual foundation and item generation process for the SWAL-QOL, a quality of life and quality of care outcomes tool under development for dysphagia researchers and clinicians.
authors.affiliation: Center for Health Services Research and Management, University of Kentucky Medical Center, and the HSR&D Program at the Lexington VA Medical Centers, Lexington, Kentucky 40536, USA.
authors.forename: C A
authors.initials: CA
authors.lastname: McHorney
authors.forename: D E
authors.initials: DE
authors.lastname: Bricker
authors.forename: A E
authors.initials: AE
authors.lastname: Kramer
authors.forename: J C
authors.initials: JC
authors.lastname: Rosenbek
authors.forename: J
authors.initials: J
authors.lastname: Robbins
authors.forename: K A
authors.initials: KA
authors.lastname: Chignell
authors.forename: J A
authors.initials: JA
authors.lastname: Logemann
authors.forename: C
authors.initials: C
authors.lastname: Clarke
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D003680:Deglutition Disorders / Q000175:diagnosis / Q000503:physiopathology / Q000628:therapy; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009960:Oropharynx / Q000503:physiopathology*; D017063:Outcome Assessment, Health Care; D017060:Patient Satisfaction; D011787:Quality of Health Care; D011788:Quality of Life; D012680:Sensitivity and Specificity; D011795:Surveys and Questionnaires; D016896:Treatment Outcome