title: An observational study of the Stroke Association family support organizer service.
abstract: OBJECTIVE
  The aim was to investigate the role of Stroke Association family support organizers, in order to decide what outcome measures would be appropriate for evaluating their service.
  
  
  METHODS
  Family support organizers (FSOs) were observed on home and hospital visits by an independent observer. Every two minutes recordings were made of the location, individuals present and activity taking place.
  
  
  METHODS
  FSOs working in the North-West and Midland regions of Britain.
  
  
  RESULTS
  The majority (71%) of visits took place in the patient's home, with both patients and carers (39%). The most frequently occurring activities were enquiry (17%), task-related conversation (14%) and support-related conversations (14%). Comparison of FSOs showed variation in the time dedicated to each activity.
  
  
  CONCLUSIONS
  FSOs spend more time engaged in practical rather than emotional activities. The role of the FSO is multifaceted. Evaluation of the FSO service needs to measure the patient's mood and functional abilities, the carer's mood and strain, and patients' and carers' knowledge and satisfaction with information and services.
authors.affiliation: School of Psychology University of Nottingham, UK. jjh@psychology.nottingham.ac.uk
authors.forename: J
authors.initials: J
authors.lastname: Harding
authors.forename: N B
authors.initials: NB
authors.lastname: Lincoln
mesh_terms: D005260:Female; D006801:Humans; D008297:Male; D016730:Program Development; D015397:Program Evaluation; D012657:Self-Help Groups / Q000458:organization & administration*; D012680:Sensitivity and Specificity; D012944:Social Support; D012955:Societies, Medical; D000071939:Stroke Rehabilitation; D006113:United Kingdom