title: Genetic testing. Counseling, laboratory, and regulatory issues and the EUROPAC protocol for ethical research in multicenter studies of inherited pancreatic diseases.
abstract: This article highlights several of the important issues and illustrates a European protocol that should be considered when offering genetic testing on a research or clinical basis for HP, as well as for other inherited disorders of the pancreas.
authors.affiliation: Center for Genomic Sciences, University of Pittsburgh, Pennsylvania, USA.
authors.forename: S E
authors.initials: SE
authors.lastname: Applebaum
authors.forename: J A
authors.initials: JA
authors.lastname: Kant
authors.forename: D C
authors.initials: DC
authors.lastname: Whitcomb
authors.forename: I H
authors.initials: IH
authors.lastname: Ellis
mesh_terms: D020732:Cytogenetic Analysis; D004992:Ethics, Medical; D005817:Genetic Counseling; D020022:Genetic Predisposition to Disease / Q000235:genetics; D006801:Humans; D015337:Multicenter Studies as Topic; D010182:Pancreatic Diseases / Q000175:diagnosis / Q000235:genetics*; D010190:Pancreatic Neoplasms / Q000175:diagnosis / Q000235:genetics; D010195:Pancreatitis / Q000175:diagnosis / Q000235:genetics*; D012307:Risk Factors