title: [Long-term prognosis and outcome of patients with primary systemic vasculitis: initial results in Germany].
abstract: Some outcome parameters have been shown to represent valuable measures for the long-term assessment of primary systemic vasculitides (PSV). These parameters include disease extent, disease activity, damage, and the health-related quality of life. We describe a concept for the establishment of a detailed documentation system for PSV with a duration of at least 5 years to obtain a reliable characterization of these patients. This database will provide the basis for a PSV cohort and the development of an interdisciplinary patient education concept followed by an evaluation with a multicenter, trial.
authors.affiliation: Medizinische Krankenhausabteilung der Rheumaklinik Bad Bramstedt/Poliklinik für Rheumatologie Universitätsklinikum Lübeck, Bad Bramstedt. k.herlyn@rheuma-zentrum.de
authors.forename: K
authors.initials: K
authors.lastname: Herlyn
authors.forename: W L
authors.initials: WL
authors.lastname: Gross
authors.forename: E
authors.initials: E
authors.lastname: Reinhold-Keller
mesh_terms: D005858:Germany; D006801:Humans; D010043:Outcome and Process Assessment, Health Care; D011446:Prospective Studies; D011788:Quality of Life; D012050:Rehabilitation, Vocational; D017749:Total Quality Management; D014657:Vasculitis / Q000534:rehabilitation*
vernacular_title: Langzeitprognose und -outcome von Patienten mit primär systemischen Vaskulitiden (PSV): Erste Ergebnisse in der BRD.