Genetic testing. Counseling, laboratory, and regulatory issues and the EUROPAC protocol for ethical research in multicenter studies of inherited pancreatic diseases.
This article highlights several of the important issues and illustrates a European protocol that should be considered when offering genetic testing on a research or clinical basis for HP, as well as for other inherited disorders of the pancreas.
Applebaum
S E
SE
Center for Genomic Sciences, University of Pittsburgh, Pennsylvania, USA.
Kant
J A
JA
Whitcomb
D C
DC
Ellis
I H
IH
D020732:Cytogenetic Analysis; D004992:Ethics, Medical; D005817:Genetic Counseling; D020022:Genetic Predisposition to Disease / Q000235:genetics; D006801:Humans; D015337:Multicenter Studies as Topic; D010182:Pancreatic Diseases / Q000175:diagnosis / Q000235:genetics*; D010190:Pancreatic Neoplasms / Q000175:diagnosis / Q000235:genetics; D010195:Pancreatitis / Q000175:diagnosis / Q000235:genetics*; D012307:Risk Factors