Accuracy of medical record scoring of the SLICC/ACR damage index for systemic lupus erythematosus.
OBJECTIVE
To study the accuracy of medical record scoring of the SLICC/ACR Damage Index (DI) for SLE.


METHODS
Medical record DI (MDI) scoring of 60 SLE patients by one physician was compared with prospective direct DI (DDI) scoring a median of 2 y earlier. Agreement between DDI and MDI total and organ system scores was compared using Cohen's kappa, the degree of misclassification by MDI and the significance of differences between DDI and MDI scores.


RESULTS
The mean duration of SLE at DDI scoring was 5.2 y. The median/mean (SD) DDI and MDI total scores were 0/0.78 (1.38) and 0/0. 85 (1.44). Damage was present on DDI and MDI scoring in 36.7% (22/60) and 38.3% (23/60) of patients. Qualitative MDI and DDI total scores (damage present/absent) showed good agreement (kappa=0.61, 95% CI=0.40-0.82, 18.3% misclassification). Quantitative MDI and DDI total scores (degree of damage) showed moderate agreement (kappa=0. 47, 95% CI=0.28-0.66, 36.7% misclassification). 9 of 12 MDI organ system scores misclassified <10% of subjects. There was no statistically significant difference between DDI and MDI total or organ system scores.


CONCLUSIONS
MDI total scoring is a good qualitative and moderate quantitative reflection of SLE related damage. MDI organ system scores are more accurate than MDI total scores.
Thumboo
J
J
Departments of Rheumatology and Immunology, Tan Tock Seng Hospital, Singapore. Julian_Thumboo@notes.ttsh.gov.sg
Lee
H Y
HY
Fong
K Y
KY
Chan
S P
SP
Chapman
C A
CA
Leong
K H
KH
Feng
P H
PH
Thio
S T
ST
Boey
M L
ML
D000293:Adolescent; D000328:Adult; D002648:Child; D015331:Cohort Studies; D005260:Female; D006801:Humans; D008180:Lupus Erythematosus, Systemic; D008297:Male; D008499:Medical Records / Q000592:standards*; D008875:Middle Aged; D011446:Prospective Studies; D015203:Reproducibility of Results; D012720:Severity of Illness Index