title: "I can speak for myself": involving individuals with intellectual disabilities as research participants.
abstract: The Lifespan and Disability Project, a 2-year qualitative study, was designed to enhance understanding of social integration by including the perspectives of individuals with intellectual disabilities. Procedures and strategies employed to involve these individuals in the project were documented. Specifically, we describe the use of individual interviews and focus groups (e.g., purpose, rationale, facilitation techniques) to collect data, and verification meetings in which a prompting hierarchy and cueing were employed to assist participants in confirming or disconfirming the researchers' interpretations of the emerging findings. Highlights of the results were presented to illustrate the efficacy of the strategies in enabling the participants with intellectual disabilities to share their perspectives on social integration.
authors.affiliation: Faculty of Education, University of Manitoba, Winnipeg, Canada.
authors.forename: J B
authors.initials: JB
authors.lastname: Mactavish
authors.forename: Z M
authors.initials: ZM
authors.lastname: Lutfiyya
authors.forename: M J
authors.initials: MJ
authors.lastname: Mahon
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D003072:Cognition Disorders / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006801:Humans; D007360:Intelligence; D007398:Interpersonal Relations; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D010344:Patient Advocacy; D012106:Research; D012649:Self Concept; D012919:Social Behavior