Eliciting user perspectives on what works.
Social care research has moved gradually in recent years to include the subjective perspective. Dementia care, which in many ways is still in its infancy, has lagged behind in this development, and much research has been informed by the carer rather than the person with dementia. As a young subject area, it is right that dementia care should look around for lessons that can be learned from other disciplines. This paper will consider how research with people with learning difficulties has developed a culture for hearing the views of service users. It will outline various methodologies, with considerations of their strengths and weaknesses. The paper will then review research in dementia care which features the subjective experience, and will finally draw out lessons and identify possible ways forward.
Stalker
K
K
Social Work Research Centre, University of Stirling, Scotland. kos1@stir.ac.uk
Gilliard
J
J
Downs
M G
MG
D000368:Aged; D003625:Data Collection; D003704:Dementia / Q000534:rehabilitation* / Q000628:therapy; D006302:Health Services Research; D006801:Humans; D007859:Learning Disabilities / Q000534:rehabilitation* / Q000628:therapy; D015279:Organizational Culture; D017063:Outcome Assessment, Health Care / Q000379:methods*