title: Refugee families' experience of research participation.
abstract: Because refugees can experience crisis, bereavement, and traumatization, there has been a rapid increase of research carried out with refugees. This study investigated how refugee families respond to participation in research. A previous study explored how adults and children had communicated about the difficult question of repatriation after arriving in a new country. Did the in-depth interviews harm or benefit them? Are there any ethical risks in research on traumatized refugees? From an original sample of 74 Bosnian refugees (5-73 years), 30 family members from 9 families including 14 children aged 6 to 19, were re-interviewed. The refugees rated participation as positive. A few parents lacked information that could have enabled them to inform the children better before the interviews. The study shows that studies on traumatized/bereaved populations can have beneficial effects.
authors.affiliation: Center for Crisis Psychology, Bergen, Norway. kdyregro@online.no
authors.forename: K
authors.initials: K
authors.lastname: Dyregrov
authors.forename: A
authors.initials: A
authors.lastname: Dyregrov
authors.forename: M
authors.initials: M
authors.lastname: Raundalen
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D001290:Attitude; D001601:Bereavement; D017522:Bosnia and Herzegovina; D002648:Child; D002675:Child, Preschool; D002986:Clinical Trials as Topic; D004992:Ethics, Medical; D005260:Female; D006805:Human Experimentation; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D010358:Patient Participation; D017060:Patient Satisfaction; D012036:Refugees / Q000523:psychology*; D013315:Stress, Psychological