title: A quality network model for the daily care of multiple sclerosis.
abstract: The urgent need to optimise treatment strategies for patients with Multiple Sclerosis (MS) was recognised by the participants at the 1998 European Charcot Foundation (ECF) symposium in Nice. The 'Nice Declaration' led to the formation of a Task Force Essentials Group charged with developing measures of the quality of MS care in Europe. Algorithms for nine critical domains (disability, spasticity, ataxia, pain, cognition, mood, fatigue, bladder function and sexual activity) and 'educated guesses' have been developed to measure interventions and outcomes which reflect the quality of clinical decision-making processes. A generic model called a 'quality network', consisting of a group of clinics connected to a central server, has been successfully applied to the care of diabetes across Europe. This model will now be developed and applied to MS management, to provide clinicians with longitudinal epidemiological data and, to evolve treatment algorithms and further quality measures. The ECF will next validate the system in a 1-year pilot study using a net of 10 clinics. Finally, an extended European network working in a learning environment will continuously assess, update and improve the quality of care of MS patients. Multiple Sclerosis (2000) 6 231 - 236
authors.affiliation: Task Force Essentials Group, European Charcot Foundation.
authors.forename: L D
authors.initials: LD
authors.lastname: Blumhardt
authors.forename: B J
authors.initials: BJ
authors.lastname: Vermeij
authors.forename: M
authors.initials: M
authors.lastname: Amato
authors.forename: O
authors.initials: O
authors.lastname: Andersen
authors.forename: G
authors.initials: G
authors.lastname: Edan
authors.forename: O
authors.initials: O
authors.lastname: Fernandez
authors.forename: M
authors.initials: M
authors.lastname: Filippi
authors.forename: J
authors.initials: J
authors.lastname: Haas
authors.forename: O R
authors.initials: OR
authors.lastname: Hommes
authors.forename: P
authors.initials: P
authors.lastname: Rieckmann
mesh_terms: D000465:Algorithms; D019058:Community Networks; D003695:Delivery of Health Care; D006801:Humans; D009103:Multiple Sclerosis / Q000503:physiopathology / Q000523:psychology / Q000628:therapy*; D017063:Outcome Assessment, Health Care; D010865:Pilot Projects; D011785:Quality Assurance, Health Care; D011787:Quality of Health Care