title: Patient-initiated hospital follow-up for rheumatoid arthritis.
abstract: OBJECTIVE
  To evaluate the clinical efficacy, cost and acceptability of a shared care system of patient- or general practitioner (GP)-initiated hospital review in rheumatoid arthritis (RA).
  
  
  METHODS
  A 2-yr randomized controlled trial of routine rheumatologist-initiated review was compared with a shared care system. Shared care patients had no routine follow-up but patients or GPs initiated access to rapid review by the multidisciplinary team via a nurse-run helpline. Control patients had a rheumatologist-initiated medical review at intervals of 3-6 months. Clinical and psychological status, resource use, and patient and GP satisfaction and confidence were assessed. Three-monthly clinical data were assessed (blind) for safety monitoring, with failure set at a 20% increase in pain, disability or disease activity.
  
  
  RESULTS
  Two hundred and nine established RA patients participated, of whom 182 were evaluable. Safety-net failures were not different between groups. Shared care patients had less pain (24 months, 3.9 cm on a 10-cm visual analogue scale vs 4.8 cm for controls; P: < 0.05), a smaller increase in pain over 2 yr (+ 0.4 cm vs +1.6 cm for controls; P: < 0.01), greater self-efficacy (6, 15, 18, 21 months, P: < 0.05), used 33.5% less resources (208 ponds sterling per patient per year vs 313 pound sterling for controls; P: < 0.001) and were more confident in the system (6, 9, 12, 18, 21, 24 months, P: < 0.01 to P: < 0.001).
  
  
  CONCLUSIONS
  A patient-initiated system for hospital review over 2 yr offers some clinical benefit compared with the traditional system, using fewer resources and attracting greater patient confidence. Longer-term assessment of the system would be appropriate.
authors.affiliation: Rheumatology Unit, University of Bristol Division of Medicine, Bristol Royal Infirmary, UK.
authors.forename: S
authors.initials: S
authors.lastname: Hewlett
authors.forename: K
authors.initials: K
authors.lastname: Mitchell
authors.forename: J
authors.initials: J
authors.lastname: Haynes
authors.forename: T
authors.initials: T
authors.lastname: Paine
authors.forename: E
authors.initials: E
authors.lastname: Korendowych
authors.forename: J R
authors.initials: JR
authors.lastname: Kirwan
mesh_terms: D000368:Aged; D001172:Arthritis, Rheumatoid / Q000523:psychology; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D008875:Middle Aged; D010342:Patient Acceptance of Health Care / Q000706:statistics & numerical data*; D016032:Randomized Controlled Trials as Topic