title: Parents' and patients' preferences and concerns in idiopathic adolescent scoliosis: a cross-sectional preoperative analysis.
abstract: METHODS
  A multicenter cross-sectional study of parents' and patient's concerns and preferences regarding surgery for idiopathic scoliosis.
  
  
  OBJECTIVE
  The purpose of this study was to analyze independently both the parents' and patients' assessments of upcoming surgery for idiopathic scoliosis.
  
  
  BACKGROUND
  No group has recently reported querying patients and their parents regarding expectations, preferences, reasons, and concerns about and for surgical treatment of adolescent idiopathic scoliosis.
  
  
  METHODS
  Ninety-one sets of parents and patients were separately asked to complete questionnaires regarding the patients' upcoming idiopathic scoliosis surgery. Patients' ages ranged from 9 to 18 years, and data were collected from four centers and seven surgeons (all active members of the Scoliosis Research Society) from April through December 1998. Thirty-nine questions covered concerns (n = 6), reasons for surgery (n = 14), expectations (n = 9), assessment of life as is (n = 5), and scar preference (n = 5).
  
  
  RESULTS
  The greatest concern about the surgery expressed by both parents and patients was neurologic deficit. The least concern for both was location and appearance of the scar. The highest expectation and main reason for having the surgery was to reduce future pain and disability as an adult. Families would be either somewhat or very dissatisfied to spend the rest of life "as is."
  
  
  CONCLUSIONS
  Although parents and patients had similar ratings and concerns, the parents' concerns were higher, and expectations were greater than the patients'.
authors.affiliation: Department of Orthopaedic Surgery, Washington University School of Medicine, St. Louis, Missouri 63110, USA. bridwellk@msnotes.wustl.edu
authors.forename: K H
authors.initials: KH
authors.lastname: Bridwell
authors.forename: H L
authors.initials: HL
authors.lastname: Shufflebarger
authors.forename: L G
authors.initials: LG
authors.lastname: Lenke
authors.forename: T G
authors.initials: TG
authors.lastname: Lowe
authors.forename: R R
authors.initials: RR
authors.lastname: Betz
authors.forename: G S
authors.initials: GS
authors.lastname: Bassett
mesh_terms: D000293:Adolescent; D002648:Child; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D010290:Parents / Q000523:psychology*; D017060:Patient Satisfaction; D011183:Postoperative Complications / Q000523:psychology; D011788:Quality of Life; D012600:Scoliosis / Q000523:psychology* / Q000601:surgery; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires