title: Empowerment through information: supporting rural families of oncology patients in palliative care.
abstract: A research project examining the support needs of families caring for a relative in palliative care was conducted in New South Wales in 1997. Data were collected from 19 families and 10 specialist palliative care nurses from eight centres throughout New South Wales using audio-taped interviews. The findings show that information was one of the most important support needs for families to enable them to effectively care for their sick relative. The information provided needed to meet the individual and varying needs of families at different stages of their palliative care journey. Often the families described not knowing what their information needs were until a crisis occurred. Lack of information on a range of areas, from practical resources to providing physical care and managing medications, was problematic. Health professionals need to take responsibility in determining if families are aware of the information available, identify the most appropriate medium for this material and provide it at the pace and time wanted by the individual family.
authors.affiliation: University of Western Sydney, Nepean/Wentworth Area Health Service, Penrith, Australia. l.wilkes@uws.edu.au
authors.forename: L
authors.initials: L
authors.lastname: Wilkes
authors.forename: K
authors.initials: K
authors.lastname: White
authors.forename: L
authors.initials: L
authors.lastname: O'Riordan
mesh_terms: D000368:Aged; D017028:Caregivers / Q000193:education* / Q000523:psychology*; D003430:Cross-Sectional Studies; D005190:Family / Q000523:psychology*; D005260:Female; D017051:Hospice Care / Q000458:organization & administration*; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000451:nursing / Q000523:psychology; D010166:Palliative Care / Q000379:methods*; D010353:Patient Education as Topic; D011209:Power, Psychological; D011368:Professional-Family Relations; D019035:Rural Health Services / Q000458:organization & administration*; D012944:Social Support