Commentary: reconstruing genetic research as research.
Author argues that although RAC has succumbed to the conflation of research and therapy as well as the problematic reduction of therapeutic criteria to compassion, its counter-cultural efforts to resist this conflation contributed to the movement to disband it. She also seeks to demonstrate how RAC has, in its work, begun to embody recommendations regarding informed consent.
Lysaught
M T
MT
University of Dayton, Ohio, USA.
D026683:Advisory Committees; D026686:Beneficence; D032962:Consent Forms; D026724:Ethical Review; D004992:Ethics, Medical; D035082:Federal Government; D030342:Genetic Diseases, Inborn; D036281:Genetic Research; D015316:Genetic Therapy; D033161:Government Regulation; D006291:Health Policy; D006805:Human Experimentation; D006801:Humans; D007258:Informed Consent; D009316:National Institutes of Health (U.S.); D010344:Patient Advocacy; D035842:Research Subjects; D018570:Risk Assessment; D036302:Therapeutic Human Experimentation; D014481:United States