title: Cancer genetic susceptibility testing: ethical and policy implications for future research and clinical practice. Cancer Genetic Studies Consortium, National Institutes of Health.
abstract: Authors examine the ethical and health policy implications in the Cancer Genetic Studies Consortium projects, which attempt to collect data on the clinical benefits and harms of cancer genetic testing. They suggest that more data are needed on the long-term physical and psychosocial effects of testing and that further examination is needed of the ethical issues raised by testing.
authors.affiliation: Department of Pediatrics, University of Arizona, Tucson, USA.
authors.forename: B S
authors.initials: BS
authors.lastname: Wilfond
authors.forename: K H
authors.initials: KH
authors.lastname: Rothenberg
authors.forename: E J
authors.initials: EJ
authors.lastname: Thomson
authors.forename: C
authors.initials: C
authors.lastname: Lerman
mesh_terms: D000328:Adult; D026683:Advisory Committees; D002648:Child; D003657:Decision Making; D030881:Disclosure; D036262:Empirical Research; D004992:Ethics, Medical; D005817:Genetic Counseling; D020022:Genetic Predisposition to Disease; D030661:Genetic Privacy; D033142:Genetic Services; D005820:Genetic Testing / Q000191:economics; D006291:Health Policy; D006801:Humans; D009369:Neoplasms / Q000191:economics / Q000235:genetics* / Q000517:prevention & control; D018570:Risk Assessment; D014481:United States