title: Important aspects of care and assistance for children with cancer.
abstract: This study examined aspects of care and assistance that are important for 8- to 12-year-old children with cancer. Data were gathered through interviews with 25 children, 31 parents, and 32 nurses. Each participant was asked: "What caring aspects are important for you/your child/the child to feel cared for?" and "What help, if any, do you/your child/the child need outside the hospital?" Data were analyzed by content analysis. The following important caring aspects were identified: amusement, clinical competence, continuity, family participation, honest communication, information, participation in decision making, satisfaction of basic needs, social competence, and time. Children most frequently mentioned the importance of social competence, amusement, and satisfaction of basic needs. Parents and nurses most frequently mentioned the importance of information, social competence, and participation in decision making. The following important assistance aspects were also identified: emotional support, family life, meeting friends, practical support, rehabilitation, and school support. Two-thirds of the children did not mention that they needed any help outside the hospital. According to parents and nurses, one third of the children needed emotional support, whereas none of the children mentioned a need for this.
authors.affiliation: Department of Nursing Science, University College of Health Sciences, Jönköping, Sweden.
authors.forename: K
authors.initials: K
authors.lastname: Enskär
authors.forename: L
authors.initials: L
authors.lastname: von Essen
mesh_terms: D001294:Attitude to Health; D002648:Child; D002983:Clinical Competence; D003142:Communication; D004645:Empathy; D005260:Female; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000451:nursing* / Q000523:psychology; D010290:Parents; D011369:Professional-Patient Relations; D012944:Social Support; D013548:Sweden