title: Quality of life before intensive care admission: agreement between patient and relative assessment.
abstract: OBJECTIVE
  To assess the agreement between patients and relatives concerning the formers' quality of life (QOL) before intensive care unit (ICU) admission.
  
  
  METHODS
  Prospective study involving direct interviews of patients and relatives during ICU stay.
  
  
  METHODS
  Two four-bed surgical-medical ICUs in a 960-bed teaching hospital.
  
  
  METHODS
  A hundred seventy-two adult, co-operative patients consecutively admitted to ICU for more than 24 h, and their relatives were interviewed. The instruments used were two questionnaires suitable for ICU patients: QOL-IT and QOL-SP. Interobserver reproducibility was investigated in 36 patients.
  
  
  RESULTS
  Interobserver reproducibility was nearly perfect (weighted Kappa 0.99 for QOL-IT and QOL-SP). Considering global scores, weighted Kappa was 0.78 for QOL-IT and 0.82 for QOL-SP, with the mean difference between patients and relatives lower than 0.3 for both scores but with limits of agreement wider than 4. Among the items, concordance was excellent in the areas of physical activity and social life for both questionnaires. Gender, living together with the patient and the degree of relationship of relatives did not influence the agreement.
  
  
  CONCLUSIONS
  The relatives give global scores for both instruments which can be regarded as acceptable substitutes for those given by patients. However, the wide limits of agreement should make investigators cautious in analysing together scores generated by patients and by relatives. The emotional dimension seems to be assessed less accurately by relatives than the physical one.
authors.affiliation: Department of Biomedical Sciences and Advanced Therapy, University Hospital of Ferrara, Italy. sar@dns.unife.it
authors.forename: M
authors.initials: M
authors.lastname: Capuzzo
authors.forename: C
authors.initials: C
authors.lastname: Grasselli
authors.forename: S
authors.initials: S
authors.lastname: Carrer
authors.forename: G
authors.initials: G
authors.lastname: Gritti
authors.forename: R
authors.initials: R
authors.lastname: Alvisi
mesh_terms: D000368:Aged; D016009:Chi-Square Distribution; D005260:Female; D006801:Humans; D007362:Intensive Care Units; D007407:Interviews as Topic; D016015:Logistic Models; D008297:Male; D017063:Outcome Assessment, Health Care; D011446:Prospective Studies; D019727:Proxy; D011788:Quality of Life; D015203:Reproducibility of Results; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires