Hearing the voices of children with chronic illness.
This qualitative study has aimed to explore children's, parents' and health professionals' experience of childhood chronic illness. Seven families and their professional carers participated in semistrucured interviews. The children's interviews were augmented with a 'drawing' technique. A grounded theory approach facilitated data collection and analysis. This paper debates the perceived passivity of the voice of children in health care and research and illustrates data collection methods that seek to give children and other disadvantaged groups a voice. The children who participated in this study are described as competent interpreters of their world.
Sartain
S A
SA
Faculty of Health, Social Work and Education, University of Northumbria at Newcastle, England.
Clarke
C L
CL
Heyman
R
R
D000223:Adaptation, Psychological; D000293:Adolescent; D000298:Adolescent, Hospitalized / Q000523:psychology*; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D002648:Child; D002673:Child, Hospitalized / Q000523:psychology*; D002908:Chronic Disease / Q000523:psychology*; D004739:England; D005260:Female; D006801:Humans; D007389:Internal-External Control; D008297:Male; D015404:Nursing Methodology Research; D009741:Nursing Staff, Hospital / Q000523:psychology; D010290:Parents / Q000523:psychology; D000297:Psychology, Adolescent; D002666:Psychology, Child; D011795:Surveys and Questionnaires