title: The utility of the Dutch Arthritis Impact Measurement Scales 2 for assessing health status in individuals with haemophilia: a pilot study.
abstract: The aim of this pilot study was to examine the usefulness of the Dutch version of the Arthritis Impact Measurement Scales 2 (D-AIMS2)in assessing the health status of Dutch individuals with haemophilia. Sixty-eight individuals with mild, moderate, and severe haemophilia attending our clinic for their annual check-up participated. They first completed the Canadian Occupational Performance Measure (COPM). The D-AIMS2 was filled in afterwards at home. With the COPM, individuals rated their specific problematic activities of daily life (ADL), as well as the severity and importance of each problem. The D-AIMS2 is a comprehensive, self-administered questionnaire that evaluates functional health status. Fifty-seven individuals completed and returned the D-AIMS2. Reliability analysis demonstrated good internal consistency for the scales (Cronbach's alpha=0.76-1.00), as well as for the components (alpha=0.80-0.88), except for the component 'social interaction' (alpha=0.44). Criterion validity of the D-AIMS2 was assessed by comparison with COPM outcomes; 80% of the problematic ADLs were included in the questionnaire, 20% were missing. Correlations between the D-AIMS2 components 'physical health' and 'symptoms' with predicted scores of those individuals by a highly experienced physiotherapist (r=0.63 and 0.53, respectively) substantiated its concurrent validity. Based on these results we concluded that the D-AIMS2, with minor adjustments, can be an appropriate tool for assessing the health status of Dutch haemophilia patients.
authors: Division of Rehabilitation and Nutritional Sciences, University Medical Center, Utrecht, the Netherlands. n.vanmeeteren@pmbr.azu.nl
authors: N L
authors: NL
authors: van Meeteren
authors: I H
authors: IH
authors: Strato
authors: N H
authors: NH
authors: van Veldhoven
authors: P
authors: P
authors: De Kleijn
authors: H M
authors: HM
authors: van den Berg
authors: P J
authors: PJ
authors: Helders
mesh_terms: D003625:Data Collection; D006304:Health Status; D006305:Health Status Indicators; D006467:Hemophilia A / Q000503:physiopathology*; D006801:Humans; D009426:Netherlands; D010865:Pilot Projects; D011795:Surveys and Questionnaires