Enabling our instruments: accommodation, universal design, and access to participation in research.
The objective of this article is to discuss problems related to full participation of people with disabilities in health services and health outcomes research. To show the problems and to suggest solutions, we offer examples from personal research experiences (ours and colleagues'), as well as from published literature, requirements of research agencies, web and news sources, and research participants' feedback. A combination of formal and informal processes can be used to enable future instruments and methods. There are ethical, legal, and methodologic imperatives for research participation enablement.
Meyers
A R
AR
Department of Health Services, Boston University School of Public Health, New England Regional Spinal Cord Injury Center, MA, USA.
Andresen
E M
EM
D000203:Activities of Daily Living; D003625:Data Collection / Q000379:methods; D006233:Persons with Disabilities / Q000534:rehabilitation*; D007802:Language; D008124:Locomotion; D017063:Outcome Assessment, Health Care / Q000379:methods / Q000458:organization & administration*; D018579:Patient Selection; D011594:Psychometrics / Q000379:methods*; D011788:Quality of Life; D013997:Time Factors; D014481:United States