title: Rheumatology telephone helplines: an activity analysis. South and West of England Rheumatology Consortium.
abstract: BACKGROUND
  Anecdotal evidence suggests that the services offered by rheumatology telephone helplines in the UK vary widely between NHS Trusts because of the lack of national or European guidelines.
  
  
  OBJECTIVE
  To conduct an activity analysis of six NHS Trust rheumatology telephone helplines in the south and west of England.
  
  
  METHODS
  Serial data were collected on the first 100 calls received on or after 1 January 1999 by six rheumatology helplines in the south and west of England. Background information was gathered on the management, availability, setting and purpose of each helpline. Data on the time taken to manage these calls and patient satisfaction were not collected.
  
  
  RESULTS
  Patients with rheumatoid arthritis were the major users and no significant differences were found in the outcome of their calls between centres, but wide variations were revealed in the management of the helplines, the populations they serve and the services they offer.
  
  
  CONCLUSIONS
  The rheumatology helpline services in six NHS Trusts in the south and west of England were shown to be the same in name only. They lacked uniformity in the delivery of care and accessibility to relevant patient groups. The geographical variation in service delivery may result in patient dissatisfaction and confusion if a number of hospitals are attended over the course of a patient's chronic disease. Further research is required to identify the helpline needs of the broader rheumatology population, patient satisfaction, outcomes and system costs, and to progress towards the development of national and European guidelines.
authors.affiliation: Royal National Hospital for Rheumatic Diseases, Bath BA1 1RL., UK.
authors.forename: C
authors.initials: C
authors.lastname: McCabe
authors.forename: J
authors.initials: J
authors.lastname: McDowell
authors.forename: J
authors.initials: J
authors.lastname: Cushnaghan
authors.forename: S
authors.initials: S
authors.lastname: Butts
authors.forename: S
authors.initials: S
authors.lastname: Hewlett
authors.forename: S
authors.initials: S
authors.lastname: Stafford
authors.forename: J
authors.initials: J
authors.lastname: O'Hea
authors.forename: A
authors.initials: A
authors.lastname: Breslin
mesh_terms: D000368:Aged; D001172:Arthritis, Rheumatoid / Q000628:therapy*; D004739:England; D019983:Guideline Adherence; D006297:Health Services Accessibility; D015277:Hotlines; D006801:Humans; D009313:National Health Programs; D017063:Outcome Assessment, Health Care; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D015397:Program Evaluation; D012219:Rheumatology