title: Jamie: living with cystinosis.
authors.affiliation: Royal Hospital for Sick Children, Edinburgh.
authors.forename: M
authors.initials: M
authors.lastname: Buchanan
mesh_terms: D002648:Child; D003554:Cystinosis / Q000451:nursing* / Q000523:psychology* / Q000628:therapy; D005192:Family Health; D006801:Humans; D007676:Kidney Failure, Chronic / Q000451:nursing* / Q000523:psychology* / Q000628:therapy; D008297:Male; D010166:Palliative Care / Q000379:methods; D010371:Pediatric Nursing / Q000379:methods*