Individualized functional priority approach to the assessment of health related quality of life in rheumatology.
Over the past several years an interest has developed in health related quality of life questionnaires that address the specific concerns of each individual rather than the entire range of potential concerns for all patients. Even disease-specific questionnaires do not capture the concerns of all individuals and some items in these questionnaires are irrelevant for a fairly large minority of people. This paper focuses on individualized functional priority questionnaires that allow patients to specify and prioritize their own personal disease related problems. Of particular interest are the scoring methods and responsiveness of these questionnaires, both necessary variables for defining minimal clinically important differences.
Clinical Epidemiology Unit, The Ottawa Hospital, and the Faculty of Medicine, University of Ottawa, Ontario, Canada.
J
J
Clinch
P
P
Tugwell
G
G
Wells
B
B
Shea
D004185:Disability Evaluation; D006304:Health Status; D006801:Humans; D011788:Quality of Life / Q000523:psychology*; D015203:Reproducibility of Results; D012216:Rheumatic Diseases / Q000523:psychology* / Q000628:therapy; D011795:Surveys and Questionnaires