Recruitment of American Indians in epidemiologic research: the Strong Heart Study.
This paper describes the methods used to recruit American Indian (AI) populations for the Strong Heart Study (SHS), a community-based study of cardiovascular disease (CVD) and its risk factors in AI men and women. Recruitment strategies included personal contact by recruiters and drivers/recruiters in remote areas, SHS staff participation in community activities, and mass media. A total of 4,549 participants aged 45-74 years were recruited from 13 American Indian tribes and communities. Overall participation rates were 72&percnt, 55&percnt, and 62&percnt, respectively, for the three study centers (Arizona, the Dakotas, and Oklahoma). Participant feedback and educational material related to risk factor reduction and promoting a healthy lifestyle were emphasized. Participants were likely to be female, young, and nonsmokers. Barriers to recruitment included lack of telephones in a large proportion of households, conflicting beliefs about health/health care/research, fears, taboos, and occasional rumors about study examination procedures. Participants were referred for follow-up of health problems detected by the study. The strong commitment of the participating communities helped to insure the success of the SHS, which can be considered a model for recruitment in future American Indian population-based studies. Success was facilitated by the use of a variety of recruitment techniques.
Stoddart
M L
ML
Center for American Indian Health Research, College of Public Health, University of Oklahoma Health Sciences Center, P.O. Box 26901, CHB-112, Oklahoma City, OK 73190, USA. martha-stoddart@ouhsc.edu
Jarvis
B
B
Blake
B
B
Fabsitz
R R
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Howard
B V
BV
Lee
E T
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Welty
T K
TK
D000368:Aged; D002318:Cardiovascular Diseases / Q000208:ethnology*; D015340:Epidemiologic Research Design; D005260:Female; D006293:Health Promotion; D006801:Humans; D007198:Indians, North American / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D018579:Patient Selection; D012307:Risk Factors; D014481:United States / Q000453:epidemiology