Genetic testing for breast cancer: where are health care providers in the decision process?
OBJECTIVE
To identify BRCA1/2 knowledge, genetic testing intentions, and communication patterns in breast cancer survivors (survivors).


METHODS
A population-based survey was conducted of 276 female survivors diagnosed between the ages of 40 and 49 and living 5 to 10 years postdiagnosis.


RESULTS
Of the 79% who responded, 8% spoke with health care providers and 53% spoke with relatives about testing. Few (26%) correctly answered over half the BRCA knowledge questions. Intention to obtain testing varied (26-67%), depending on insurance coverage.


CONCLUSIONS
Health care providers and survivors seldom discuss BRCA testing. Providing information to survivors would increase their ability to make informed testing decisions.
Velicer
C M
CM
Department of Epidemiology, University of Washington, Group Health Cooperative of Puget Sound, Seattle, Washington, USA.
Taplin
S
S
D000328:Adult; D024682:BRCA2 Protein; D001943:Breast Neoplasms / Q000175:diagnosis* / Q000235:genetics*; D002285:Carcinoma, Intraductal, Noninfiltrating / Q000175:diagnosis / Q000235:genetics; D005260:Female; D019398:Genes, BRCA1; D005817:Genetic Counseling; D006801:Humans; D008875:Middle Aged; D009363:Neoplasm Proteins / Q000235:genetics; D010353:Patient Education as Topic; D010817:Physician-Patient Relations; D011795:Surveys and Questionnaires; D013997:Time Factors; D014157:Transcription Factors / Q000235:genetics
D024682:BRCA2 Protein; D009363:Neoplasm Proteins; D014157:Transcription Factors