How do AD patients and their caregivers decide whether to enroll in a clinical trial?
To examine how patients and caregivers decide whether to enroll in a clinical trial, the authors conducted semi-structured interviews with 22 family caregivers of patients with mild to moderate AD who were recruited for a clinical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.
Karlawish
J H
JH
Department of Medicine, The University of Pennsylvania, Philadelphia, USA. Jasonkar@mail.med.upenn.edu
Casarett
D
D
Klocinski
J
J
Sankar
P
P
D000544:Alzheimer Disease / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D002986:Clinical Trials as Topic; D003625:Data Collection; D003657:Decision Making