Solidarity and equity: new ethical frameworks for genetic databases.
Genetic database initiatives have given rise to considerable debate about their potential harms and benefits. The question arises as to whether existing ethical frameworks are sufficient to mediate between the competing interests at stake. One approach is to strengthen mechanisms for obtaining informed consent and for protecting confidentiality. However, there is increasing interest in other ethical frameworks, involving solidarity--participation in research for the common good--and the sharing of the benefits of research.
Chadwick
R
R
Institute for Environmental Philosophy and Public Policy, Lancaster University, Bailrigg, Lancaster, Lancashire LA1 4SH, UK. r.chadwick@lancaster.ac.uk
Berg
K
K
D003219:Confidentiality; D004247:DNA / Q000235:genetics*; D019992:Databases as Topic / Q000191:economics / Q000331:legislation & jurisprudence; D004992:Ethics, Medical; D005826:Genetics, Medical / Q000191:economics / Q000331:legislation & jurisprudence; D006801:Humans; D007258:Informed Consent; D010330:Patents as Topic
D004247:DNA