How do AD patients and their caregivers decide whether to enroll in a clinical trial?
To examine how patients and caregivers decide whether to enroll in a clinical trial, the authors conducted semi-structured interviews with 22 family caregivers of patients with mild to moderate AD who were recruited for a clinical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.
Department of Medicine, The University of Pennsylvania, Philadelphia, USA. Jasonkar@mail.med.upenn.edu
J H
JH
Karlawish
D
D
Casarett
J
J
Klocinski
P
P
Sankar
D000544:Alzheimer Disease / Q000523:psychology*; D017028:Caregivers / Q000523:psychology*; D002986:Clinical Trials as Topic; D003625:Data Collection; D003657:Decision Making