title: Psychosocial care in family cancer clinics in The Netherlands: a brief report.
abstract: The present survey was undertaken to obtain a better understanding of the organisation of standard psychosocial services at the family cancer clinics in The Netherlands. Colleagues at the nine family cancer clinics in The Netherlands completed a brief questionnaire. It was found that all clinics offered professional psychosocial support for asymptomatic women from hereditary breast-ovarian cancer (HBOC) families. On average, one half-time psychosocial worker (usually a social worker and/or a psychologist) was involved in the genetic counselling. All clinics have developed education material about HBOC independently. As a result of the survey, an effort is made to coordinate the development of education material. Furthermore, it is concluded that more attention should be paid to symptomatic mutation carriers and those individuals, who receive inconclusive genetic test results. These subgroups are usually excluded from the protocols for psychosocial care in genetic counselling.
authors.affiliation: Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Plesmanlaan 121, 1066 CX, Amsterdam, The Netherlands. ebleiker@nki.nl
authors.forename: E M
authors.initials: EM
authors.lastname: Bleiker
authors.forename: F J
authors.initials: FJ
authors.lastname: Grosfeld
authors.forename: D E
authors.initials: DE
authors.lastname: Hahn
authors.forename: C
authors.initials: C
authors.lastname: Honing
mesh_terms: D001943:Breast Neoplasms / Q000235:genetics; D002173:Cancer Care Facilities; D005192:Family Health; D005260:Female; D005817:Genetic Counseling / Q000458:organization & administration*; D006801:Humans; D008605:Mental Health Services / Q000458:organization & administration*; D009426:Netherlands; D010051:Ovarian Neoplasms / Q000235:genetics; D013664:Teaching Materials