title: Coverage of neonatal screening: failure of coverage or failure of information system.
abstract: OBJECTIVE
  To evaluate neonatal screening coverage using data routinely collected on the laboratory computer.
  
  
  METHODS
  90 850 births in 14 North East Thames community provider districts over a 21 month period.
  
  
  METHODS
  Births notified to local child health computers are electronically copied to the neonatal laboratory computer system, and incoming Guthrie cards are matched against these birth records before testing. The computer records for the study period were processed to estimate the coverage of the screening programme.
  
  
  RESULTS
  Out of an estimated 90 850 births notified to child health computers, all but 746 (0.82%) appeared to have been screened or could be otherwise accounted for (0.14% in non-metropolitan districts, 0.39% in suburban districts, and 1.68% in inner city districts). A further 893 resident infants had been tested, but could not be matched to the list of notified resident births. The calculated programme coverage already exceeds the 99.5% National Audit Programme standard in 7/14 districts. Elsewhere it is not clear whether it is coverage or recording of coverage that is low.
  
  
  CONCLUSIONS
  Previous reports of low coverage may have been exaggerated. High coverage can be shown using routine information systems. Design of information systems that deliver accurate measures of coverage would be more useful than comparison of inadequately measured coverage with a national standard. The new NHS number project will create an opportunity to achieve this.
authors.affiliation: Department of Epidemiology and Public Health, Institute of Child Health, 30 Guilford St, London WC1N 1EH, UK. t.ades@bristol.ac.uk
authors.forename: A E
authors.initials: AE
authors.lastname: Ades
authors.forename: J
authors.initials: J
authors.lastname: Walker
authors.forename: R
authors.initials: R
authors.lastname: Jones
authors.forename: I
authors.initials: I
authors.lastname: Smith
mesh_terms: D001719:Birth Certificates; D002984:Clinical Laboratory Information Systems / Q000592:standards*; D006801:Humans; D007231:Infant, Newborn; D008498:Medical Record Linkage / Q000592:standards; D015997:Neonatal Screening / Q000592:standards*; D010043:Outcome and Process Assessment, Health Care; D010661:Phenylketonurias / Q000175:diagnosis