A nationwide follow-up system is essential for a neonatal screening program.
A long-term follow-up study gives many benefits to patients detected by neonatal screening, their families, and all members who are involved in neonatal screening program. However, the follow-up system is not functioning satisfactorily enough in Japan. A nationwide long-term follow-up system needs to be established immediately to make the neonatal screening system complete in Japan.
Kuroda
Y
Y
Department of Pediatrics, University of Tokushima, Japan.
Ito
M
M
D002662:Child Health Services / Q000458:organization & administration*; D003266:Continuity of Patient Care / Q000458:organization & administration*; D006801:Humans; D015994:Incidence; D007231:Infant, Newborn; D007564:Japan / Q000453:epidemiology; D008661:Metabolism, Inborn Errors / Q000175:diagnosis / Q000453:epidemiology / Q000628:therapy; D009313:National Health Programs / Q000458:organization & administration*; D015997:Neonatal Screening / Q000458:organization & administration*