[Quality of life of adults with univentricular hearts].
This study sought to evaluate the quality of life of surviving adults with univentricular heart and to determine the impact of sociodemographic and clinical characteristics on quality of life. The health records of 89 survivors with univentricular heart living in France at the time of the study were reviewed. They were 17 to 49 years old (median: 21). Sixty-seven patients answered the Duke questionnaire. Sociodemographic and clinical variables were similar in the responders and non-responders. The scores of patients who answered the questionnaire were compared with national norms. The impact of sociodemographic and clinical variables on individual Duke's measures was assessed. The Duke scores of adults with univentricular heart were similar to those of the normal population. Cyanosis predicted a worse score for physical (p = .05) and perceived health measures (p = .02). The higher educational level predicted a better score for physical (p .004), mental (p = .01), and general health measures (p = .02). Orthopaedic problems worsened social score (p = .05). Psychosocial problems worsened pain score (p = .04). Mitral atresia, in comparison with the other anatomical types, worsened perceived health score (p = .02). Finally, patients younger than 23 years scored better for almost all of health and dysfunction measures. In conclusion, despite repeated interventions and other disease-related everyday stresses, a selected group of adults with univentricular heart had a satisfying quality of life. These patients probably developed copying mechanisms, easing the psychological stress, and oriented themselves towards a different set of values in everyday life so that to accept disabilities and to recalibrate personal expectations.
Saliba
Z
Z
Service de cardiologie pédiatrique, hôpital Necker-Enfants-malades, 149, rue de Sèvres, 75743 Paris.
Butera
G
G
Aggoun
Y
Y
Bonnet
D
D
Bonhoeffer
P
P
Acar
P
P
Villain
E
E
Sidi
D
D
Kachaner
J
J
Iserin
L
L
D000293:Adolescent; D000328:Adult; D003430:Cross-Sectional Studies; D003490:Cyanosis / Q000150:complications / Q000209:etiology; D003710:Demography; D006233:Persons with Disabilities; D004493:Education; D005260:Female; D006352:Heart Ventricles / Q000002:abnormalities*; D006801:Humans; D008297:Male; D008875:Middle Aged; D010146:Pain; D011379:Prognosis; D011788:Quality of Life; D012720:Severity of Illness Index; D012923:Social Class