title: [Medical and educational support to children with neuromuscular disorders in schools: an analysis based on a questionnaire to teachers].
abstract: To clarify the medical and educational support necessary for ordinary school life of children with neuromuscular disorders, a questionnaire was sent to their homeroom teachers. The 13 outpatients consisted of 7 with Duchenne muscular dystrophy, 5 other muscular dystrophies, and 1 with another myopathy. Their teachers desired the environment and system, such as elevators and personnel to support their movements, should be improved. Regarding the school curriculum, special advice of medical staff was considered to be necessary to provide physical education and to promote their well-retained activities. The teachers regarded it valuable to teach them together with healthy children, for the children with or without neuromuscular disorders, teachers, and people in the community. In the future, it is expected that national sanatariums and schools for the handicapped will function as special facilities that are open to the community for general counselling and provide various informations. Pediatric neurologists should play a role as managers caring for the patients, their families, teachers, schools, and communities.
authors.affiliation: Department of Pathology for the Handicapped, Faculty of Education, Ehime University, Matsuyama, Ehime.
authors.forename: H
authors.initials: H
authors.lastname: Nagao
mesh_terms: D000293:Adolescent; D002648:Child; D005160:Facility Design and Construction; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D020388:Muscular Dystrophy, Duchenne / Q000534:rehabilitation; D009468:Neuromuscular Diseases / Q000534:rehabilitation*; D012574:Schools; D011795:Surveys and Questionnaires