title: What the publisher can teach the patient: intellectual property and privacy in an era of trusted privication.
abstract: This article begins with a premise that intellectual property and privacy have something significant and yet understated in common: both are about balancing a creator's desire to control a particular set of data with consumers' desires to access and redistribute that data.  Both law and technology influence such balancing, making it more or less palatable to use data for particular purposes--whether one is an individual making a copy of a popular song for a friend, or a hospital selling a list of maternity ward patients to a day care service.  In the shadow of the Internet's rapid development and concomitant easing of barriers to data sharing, holders of intellectual property are pairing increased legal protection with the technologies of "trusted systems."  I describe how these technologies might allow more thorough mass distribution of data, while allowing publishers to retain unprecedented control over their wares. For instance, an e-Book seller might charge one price for a read-only copy that could not be printed or forwarded and charge an additional fee for each copy or printout made.  Taking up the case of medical privacy, I then suggest that those who worry about the confidentiality of medical records, particularly as they are digitized by recent congressional mandate, might seek to augment comparatively paltry legal protections with trusted systems technologies.  For instance, a trusted system could allow a patient to specify how and by whom her records could be used; within limits, she could allow full access to her primary care physician, while allowing only time-limited access to emergency care providers, non-personally identifiable access to medical researchers, and no access at all for marketing purposes.  These technologies could allow for new kinds of privacy protection, without sacrificing the legitimate interests of the consumers of medical records.
authors.affiliation: Harvard Law School, USA.
authors.forename: J
authors.initials: J
authors.lastname: Zittrain
mesh_terms: D006801:Humans; D007221:Industry; D019451:Information Management / Q000331:legislation & jurisprudence; D018973:Intellectual Property; D020407:Internet; D016347:Medical Records Systems, Computerized; D009146:Music; D018907:Privacy; D011643:Publishing; D014481:United States