title: The Brazilian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
abstract: We report the cross-cultural adaptation and validation into Brazilian-Portuguese of the parent's version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children regardless the underlying disease. The Brazilian CHAQ was revalidated, while the CHQ has been derived from the Portuguese version. A total of 471 subjects were enrolled: 157 patients with JIA (27% systemic onset, 38% polyarticular onset, 9% extended oligoarticular subtype, and 26% persistent oligoarticular subtype) and 314 healthy children. The CHAQ discriminated clinically healthy subjects from JIA patients, with the systemic, polyarticular and extended oligoarticular subtypes having a higher degree of disability, pain, and lower overall well-being scores when compared to their healthy peers. Also the CHQ discriminated clinically healthy subjects from JIA patients, with the systemic onset, polyarticular onset and extended oligoarticular subtypes having a lower physical and psychosocial well-being score when compared to their healthy peers. In conclusion the Brazilian versions of the CHAQ-CHQ are reliable and valid tools for the combined physical and psychosocial assessment of children with JIA.
authors.affiliation: Faculdade de Medicina de Botucatu, UNESP, Departamento de Pediatria, 18618-970 Botucatu, São Paulo, Brazil. cmachado@fmb.unesp.br
authors.forename: C S
authors.initials: CS
authors.lastname: Machado
authors.forename: N
authors.initials: N
authors.lastname: Ruperto
authors.forename: C H
authors.initials: CH
authors.lastname: Silva
authors.forename: V P
authors.initials: VP
authors.lastname: Ferriani
authors.forename: I
authors.initials: I
authors.lastname: Roscoe
authors.forename: L M
authors.initials: LM
authors.lastname: Campos
authors.forename: S K
authors.initials: SK
authors.lastname: Oliveira
authors.forename: M H
authors.initials: MH
authors.lastname: Kiss
authors.forename: B E
authors.initials: BE
authors.lastname: Bica
authors.forename: F
authors.initials: F
authors.lastname: Sztajnbok
authors.forename: C A
authors.initials: CA
authors.lastname: Len
authors.forename: J A
authors.initials: JA
authors.lastname: Melo-Gomes
mesh_terms: D001171:Arthritis, Juvenile / Q000175:diagnosis*; D001938:Brazil; D002648:Child; D003431:Cross-Cultural Comparison; D003466:Cultural Characteristics; D004185:Disability Evaluation; D005260:Female; D006304:Health Status; D006801:Humans; D007802:Language; D008297:Male; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires