title: The Russian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
abstract: We report herein the results of the cross-cultural adaptation and validation into the Russian language of the parent's version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children independently from the underlying disease. The Russian CHAQ CHQ were fully validated with 3 forward and 3 backward translations. A total of 146 subjects were enrolled: 86 patients with JIA (23% systemic onset, 39% polyarticular onset, 15% extended oligoarticular subtype, and 23% persistent oligoarticular subtype) and 60 healthy children. The CHAQ clinically discriminated between healthy subjects and JIA patients, with the systemic, polyarticular and extended oligoarticular subtypes having a higher degree of disability, pain, and a lower overall well-being when compared to their healthy peers. Also the CHQ clinically discriminated between healthy subjects and JIA patients, with the systemic onset, polyarticular onset and extended oligoarticular subtypes having a lower physical and psychosocial well-being when compared to their healthy peers. In conclusion the Russian version of the CHAQ-CHQ is a reliable, and valid tool for the functional, physical and psychosocial assessment of children with JIA.
authors.affiliation: Institute of Rheumatology RAMS, Children's Department, Kashirskoye Shosse 34A, 115522 Moscow, Russia. nikishina@mtu-net.ru
authors.forename: I
authors.initials: I
authors.lastname: Nikishina
authors.forename: N
authors.initials: N
authors.lastname: Ruperto
authors.forename: N
authors.initials: N
authors.lastname: Kuzmina
authors.forename: T
authors.initials: T
authors.lastname: Shelepina
authors.forename: O
authors.initials: O
authors.lastname: Illarionova
authors.forename: S
authors.initials: S
authors.lastname: Salougina
authors.forename: M
authors.initials: M
authors.lastname: Kaleda
authors.forename: O
authors.initials: O
authors.lastname: Borodacheva
mesh_terms: D000293:Adolescent; D001171:Arthritis, Juvenile / Q000175:diagnosis*; D002648:Child; D003431:Cross-Cultural Comparison; D003466:Cultural Characteristics; D004185:Disability Evaluation; D005260:Female; D006304:Health Status; D006801:Humans; D007802:Language; D008297:Male; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D012426:Russia; D011795:Surveys and Questionnaires