title: The Dutch version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
abstract: We report herein the results of the cross-cultural adaptation and validation into the Dutch language of the parent's version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children independently from the underlying disease. The Dutch CHAQ was fully validated with 3 forward and 3 backward translations while the CHQ was already published and therefore it was revalidated. A total of 180 subjects were enrolled: 100 patients with JIA (17% systemic onset, 31% polyarticular onset, 18% extended oligoarticular subtype, and 34% persistent oligoarticular subtype) and 80 healthy children. The CHAQ clinically discriminated between healthy subjects and JIA patients, with the systemic, polyarticular and extended oligoarticular subtypes having a higher degree of disability, pain, and a lower overall well-being when compared to their healthy peers. Also the CHQ clinically discriminated between healthy subjects and JIA patients, with the systemic onset, polyarticular onset and extended oligoarticular subtypes having a lower physical and psychosocial well-being when compared to their healthy peers. In conclusion the Dutch version of the CHAQ-CHQ is a reliable, and valid tool for the functional, physical and psychosocial assessment of children with JIA.
authors.affiliation: UMC Utrecht-Wilhelmina Kinderziekenhuis, Utrecht, Netherlands.
authors.forename: N
authors.initials: N
authors.lastname: Wulffraat
authors.forename: J J
authors.initials: JJ
authors.lastname: van der Net
authors.forename: N
authors.initials: N
authors.lastname: Ruperto
authors.forename: S
authors.initials: S
authors.lastname: Kamphuis
authors.forename: B J
authors.initials: BJ
authors.lastname: Prakken
authors.forename: R
authors.initials: R
authors.lastname: Ten Cate
authors.forename: R M
authors.initials: RM
authors.lastname: Van Soesbergen
authors.forename: M A
authors.initials: MA
authors.lastname: Van Rossum
authors.forename: H
authors.initials: H
authors.lastname: Raat
authors.forename: J M
authors.initials: JM
authors.lastname: Landgraf
authors.forename: W
authors.initials: W
authors.lastname: Kuis
mesh_terms: D000293:Adolescent; D001171:Arthritis, Juvenile / Q000175:diagnosis*; D002648:Child; D003431:Cross-Cultural Comparison; D003466:Cultural Characteristics; D004185:Disability Evaluation; D005260:Female; D006304:Health Status; D006801:Humans; D007802:Language; D008297:Male; D009426:Netherlands; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires