title: The Swedish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
abstract: We report herein the results of the cross-cultural adaptation and validation into the Swedish language of the parent's version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children independently from the underlying disease. The Swedish CHAQ CHQ were already published and therefore were revalidated in this study. A total of 129 subjects were enrolled: 69 patients with JIA (13% systemic onset, 39% polyarticular onset, 25% extended oligoarticular subtype, and 23% persistent oligoarticular subtype) and 60 healthy children. The CHAQ clinically discriminated between healthy subjects and JIA patients, with the systemic, polyarticular and extended oligoarticular subtypes having a higher degree of disability, pain, and a lower overall well-being when compared to their healthy peers. Also the CHQ clinically discriminated between healthy subjects and JIA patients, with the systemic onset, polyarticular onset and extended oligoarticular subtypes having a lower physical and psychosocial well-being when compared to their healthy peers. In conclusion the Swedish version of the CHAQ-CHQ are reliable, and valid tools for the functional, physical and psychosocial assessment of children with JIA.
authors.affiliation: Ryhov's County Hospital, Department of Pediatrics, 551 85 Jönköping, Sweden. boel.andersson-gare@ryhov.ltjkpg.se
authors.forename: B
authors.initials: B
authors.lastname: Andersson Gäre
authors.forename: N
authors.initials: N
authors.lastname: Ruperto
authors.forename: S
authors.initials: S
authors.lastname: Berg
authors.forename: S
authors.initials: S
authors.lastname: Hagelberg
authors.forename: N O
authors.initials: NO
authors.lastname: Jonsson
authors.forename: B
authors.initials: B
authors.lastname: Magnusson
authors.forename: J
authors.initials: J
authors.lastname: Martinell
authors.forename: A
authors.initials: A
authors.lastname: Erling
authors.forename: J M
authors.initials: JM
authors.lastname: Landgraf
mesh_terms: D000293:Adolescent; D001171:Arthritis, Juvenile / Q000175:diagnosis*; D002648:Child; D003431:Cross-Cultural Comparison; D003466:Cultural Characteristics; D004185:Disability Evaluation; D005260:Female; D006304:Health Status; D006801:Humans; D007802:Language; D008297:Male; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D013548:Sweden