title: The British version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).
abstract: We report herein the results of the cross-cultural adaptation and validation into the British language of the parent's version of two health related quality of life instruments. The Childhood Health Assessment Questionnaire (CHAQ) is a disease specific health instrument that measures functional ability in daily living activities in children with juvenile idiopathic arthritis (JIA). The Child Health Questionnaire (CHQ) is a generic health instrument designed to capture the physical and psychosocial well-being of children independently from the underlying disease. A total of 440 subjects were enrolled: 219 patients with JIA (17% systemic onset, 41% polyarticular onset, 33% extended oligoarticular subtype, and 9% persistent oligoarticular subtype) and 221 healthy children. The CHAQ clinically discriminated between healthy subjects and JIA patients, with the systemic, polyarticular and extended oligoarticular subtypes having a higher degree of disability, pain, and a lower overall well-being when compared to their healthy peers. Also the CHQ clinically discriminated between healthy subjects and JIA patients, with the systemic onset, polyarticular onset and extended oligoarticular subtypes having a lower physical and psychosocial well-being when compared to their healthy peers. In conclusion the British version of the CHAQ-CHQ is a reliable, and valid tool for the functional, physical and psychosocial assessment of children with JIA.
authors.affiliation: Institute of Child Health, University College, London, United Kingdom.
authors.forename: J
authors.initials: J
authors.lastname: Nugent
authors.forename: N
authors.initials: N
authors.lastname: Ruperto
authors.forename: J
authors.initials: J
authors.lastname: Grainger
authors.forename: C
authors.initials: C
authors.lastname: Machado
authors.forename: S
authors.initials: S
authors.lastname: Sawhney
authors.forename: E
authors.initials: E
authors.lastname: Baildam
authors.forename: J
authors.initials: J
authors.lastname: Davidson
authors.forename: H
authors.initials: H
authors.lastname: Foster
authors.forename: A
authors.initials: A
authors.lastname: Hall
authors.forename: P
authors.initials: P
authors.lastname: Hollingworth
authors.forename: J
authors.initials: J
authors.lastname: Sills
authors.forename: H
authors.initials: H
authors.lastname: Venning
authors.forename: J E
authors.initials: JE
authors.lastname: Walsh
authors.forename: J M
authors.initials: JM
authors.lastname: Landgraf
authors.forename: M
authors.initials: M
authors.lastname: Roland
authors.forename: P
authors.initials: P
authors.lastname: Woo
authors.forename: K J
authors.initials: KJ
authors.lastname: Murray
mesh_terms: D000293:Adolescent; D001171:Arthritis, Juvenile / Q000175:diagnosis*; D002648:Child; D003431:Cross-Cultural Comparison; D003466:Cultural Characteristics; D004185:Disability Evaluation; D005260:Female; D006304:Health Status; D006801:Humans; D007802:Language; D008297:Male; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D006113:United Kingdom