title: Assessing the relationship between productivity levels and severity of haemophilia.
abstract: In this study, we assessed whether severity of haemophilia was associated with levels of productivity. Productivity levels were assessed by sending a 'time-use' questionnaire to 228 individuals with mild, moderate and severe haemophilia. The results showed that, after adjusting for differences in age and HIV serostatus, there were no differences between individuals with severe and mild/moderate haemophilia in terms of completed levels of education, employment status, absenteeism from work over the previous 2 weeks, the number of hours each week spent performing unpaid tasks and how efficiently individuals performed these tasks. The data did suggest, however, that a significantly larger proportion of individuals with severe haemophilia (32%) required help from family or friends to perform routine household tasks each week than individuals with mild/moderate haemophilia (13%). In conclusion, it is possible that individuals with severe haemophilia have similar levels of productivity compared to individuals with mild/moderate haemophilia or that treatment with secondary prophylaxis has helped to reduce differences between the two patient groups.
authors.affiliation: Health Economics Research Group, Brunel University, Uxbridge, London, UK. aminers@nice.nhs.uk
authors.forename: A H
authors.initials: AH
authors.lastname: Miners
authors.forename: C A
authors.initials: CA
authors.lastname: Sabin
authors.forename: K H
authors.initials: KH
authors.lastname: Tolley
authors.forename: A
authors.initials: A
authors.lastname: Parnaby
authors.forename: C A
authors.initials: CA
authors.lastname: Lee
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D016009:Chi-Square Distribution; D004517:Education, Professional; D004526:Efficiency; D006467:Hemophilia A; D006801:Humans; D007899:Leisure Activities; D008875:Middle Aged; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires; D014937:Work