Involving patients in research: setting up a service users' advisory group.
Looks at some of the issues raised by patients' involvment in the research process. Uses the example of a service users' advisory group established as part of a diabetes service evaluation in the north of England. Key conclusions were: a precise role for the group should be specified at the outset; genuine user involvement is needed; wide and accurate representation of all relevant groups in society is essential; and, researchers must approach users with open minds with a view to shared decision making rather than control.
Rhodes
P
P
Diabetes Evaluation Project, Bradford Hospitals NHS Trust, UK.
Nocon
A
A
Wright
J
J
Harrison
S
S
D001210:Asia, Southeastern / Q000208:ethnology; D002985:Clinical Protocols; D003153:Community Health Services / Q000458:organization & administration; D003256:Community Participation; D003258:Consumer Behavior; D003924:Diabetes Mellitus, Type 2 / Q000453:epidemiology / Q000517:prevention & control*; D004739:England; D005260:Female; D006302:Health Services Research / Q000458:organization & administration*; D006801:Humans; D007407:Interviews as Topic; D008137:Longitudinal Studies; D008297:Male; D020380:Needs Assessment; D018579:Patient Selection; D011320:Primary Health Care / Q000458:organization & administration*; D011640:Public Policy