title: Carrier screening for cystic fibrosis among Maryland obstetricians before and after the 1997 NIH Consensus Conference.
abstract: The 1997 National Institutes of Health (NIH) Consensus Conference on Cystic Fibrosis (CF) testing recommended that carrier screening be offered to all pregnant women and couples planning a pregnancy. We surveyed 492 Maryland Ob-Gyns before and after the consensus conference to: (1) assess whether obstetricians changed their practice regarding CF carrier testing, and (2) identify the factors associated with changing practice patterns, including awareness of the statement, and knowledge about CF. Fifty-six percent (275) responded to the first mail questionnaire and 107 obstetricians responded to both questionnaires. In 1998, only 18% of respondents to the second questionnaire were familiar with the NIH statement, but 43% reported discussing testing with patients with no family history, a significant increase from 1997, when only 20% reported discussing testing. Less than one-third correctly answered six multiple-choice knowledge questions about CF and carrier testing. In multivariate analysis, knowledge and familiarity with the NIH consensus statement were not associated with beginning to discuss CF carrier testing after the CF conference with their patients without a family history.
authors.affiliation: Abt Associates, Inc.. Cambridge, MA 02138, USA.
authors.forename: T
authors.initials: T
authors.lastname: Doksum
authors.forename: B A
authors.initials: BA
authors.lastname: Bernhardt
authors.forename: N A
authors.initials: NA
authors.lastname: Holtzman
mesh_terms: D000328:Adult; D015975:Consensus Development Conferences, NIH as Topic; D003430:Cross-Sectional Studies; D003550:Cystic Fibrosis / Q000453:epidemiology / Q000235:genetics / Q000517:prevention & control*; D005260:Female; D006580:Genetic Carrier Screening; D005817:Genetic Counseling; D005820:Genetic Testing / Q000706:statistics & numerical data*; D019983:Guideline Adherence; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008396:Maryland; D008875:Middle Aged; D009774:Obstetrics / Q000706:statistics & numerical data*; D010353:Patient Education as Topic; D010817:Physician-Patient Relations; D010820:Physicians / Q000523:psychology*; D011247:Pregnancy; D011364:Professional Practice / Q000706:statistics & numerical data / Q000639:trends; D012680:Sensitivity and Specificity; D011795:Surveys and Questionnaires; D014481:United States