title: Design of a consumer health record for supporting the patient-centered management of chronic diseases.
abstract: This paper describes and discusses the design and usage of a shareable consumer health record system to investigate whether these systems can assist in the management of chronic diseases. This web-based system that can be used both by care providers and patients contains medical and patient information, provides access to websites that contain quality information, provides guideline-based advice, allows discussion between patients and allows us to interrogate both patients and care providers on a regular basis in order to get a good impression of the utility of such a consumer record for both chronic patients and the physicians and nurses. A health record system that was developed for the area of Diabetes is presented as an example.
authors.affiliation: Department of Medical Informatics, University of Maastricht, Maastricht, The Netherlands. P.deClercq@mi.unimaas.nl
authors.forename: P A
authors.initials: PA
authors.lastname: de Clercq
authors.forename: A
authors.initials: A
authors.lastname: Hasman
authors.forename: B H
authors.initials: BH
authors.lastname: Wolffenbuttel
mesh_terms: D002908:Chronic Disease / Q000628:therapy*; D003920:Diabetes Mellitus / Q000628:therapy; D019468:Disease Management; D006801:Humans; D020407:Internet; D016347:Medical Records Systems, Computerized / Q000706:statistics & numerical data; D010358:Patient Participation; D018802:Patient-Centered Care; D010865:Pilot Projects; D017410:Practice Guidelines as Topic