title: Reinventing patient-centered computing for the twenty-first century.
abstract: Despite evidence over the past decade that patients like and will use patient-centered computing systems in managing their health, patients have remained forgotten stakeholders in advances in clinical computing systems. We present a framework for patient empowerment and the technical realization of that framework in an architecture called CareLink. In an evaluation of the initial deployment of CareLink in the support of neonatal intensive care, we have demonstrated a reduction in the length of stay for very-low birthweight infants, and an improvement in family satisfaction with care delivery. With the ubiquitous adoption of the Internet into the general culture, patient-centered computing provides the opportunity to mend broken health care relationships and reconnect patients to the care delivery process. CareLink itself provides functionality to support both clinical care and research, and provides a living laboratory for the further study of patient-centered computing.
authors.affiliation: Clincal Research and Development, Clinician Support Technology, Framingham, MA, USA. hgoldberg@cstlink.com
authors.forename: H S
authors.initials: HS
authors.lastname: Goldberg
authors.forename: A
authors.initials: A
authors.lastname: Morales
authors.forename: L
authors.initials: L
authors.lastname: Gottlieb
authors.forename: L
authors.initials: L
authors.lastname: Meador
authors.forename: C
authors.initials: C
authors.lastname: Safran
mesh_terms: D006801:Humans; D007224:Infant Care; D007231:Infant, Newborn; D007256:Information Systems; D020407:Internet; D008491:Medical Informatics Applications; D016347:Medical Records Systems, Computerized; D010353:Patient Education as Topic / Q000379:methods*; D010358:Patient Participation / Q000379:methods / Q000639:trends*; D011787:Quality of Health Care