title: Zora: a pilot virtual community in the pediatric dialysis unit.
abstract: We describe a five-month pilot project conducted in the dialysis unit at Boston's Children's Hospital. Pediatric patients with renal disease used the Zora therapeutic community program while undergoing hemodialysis. Zora is a 3D multi-user computer environment designed at the MIT Media Laboratory to help young people explore issues of identity, while engaging in a virtual community. Users build "virtual rooms" and populate them with objects and characters, program them with storytelling behaviors, and converse with other young people in real-time through a virtual character representing themselves. It was specifically designed to help young people explore issues of identity, while engaging in a participatory virtual community. This paper presents the experience and evaluates the feasibility and safety of using Zora in a hospital setting. It describes how Zora facilitated explorations of identity and mutual patient support and interaction. Finally it also presents design recommendations for future interventions of this kind. More generally, this paper explores the potential of technology specifically designed with therapeutic purposes to help patients cope with their illness.
authors.affiliation: MIT Media Laboratory, Cambridge, MA 02139, USA. marinau@media.mit.edu
authors.forename: M U
authors.initials: MU
authors.lastname: Bers
authors.forename: J
authors.initials: J
authors.lastname: Gonzalez-Heydrich
authors.forename: D
authors.initials: D
authors.lastname: Raches
authors.forename: D R
authors.initials: DR
authors.lastname: DeMaso
mesh_terms: D001291:Attitude of Health Personnel; D001292:Attitude to Computers; D002648:Child; D003196:Computer Graphics; D006801:Humans; D007676:Kidney Failure, Chronic / Q000523:psychology* / Q000628:therapy; D010044:Outpatient Clinics, Hospital; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D010372:Pediatrics; D010865:Pilot Projects; D002666:Psychology, Child; D006435:Renal Dialysis / Q000523:psychology*; D012657:Self-Help Groups; D014584:User-Computer Interface