title: Policies, procedures, and the irony of protections.
authors.affiliation: Child Health Institute, University of Washington 146 N Canal St, Ste 300 Seattle, WA 98103-8652, USA. feudtner@u.washington.edu
authors.forename: Chris
authors.initials: C
authors.lastname: Feudtner
mesh_terms: D003657:Decision Making; D006801:Humans; D019989:Persons with Intellectual Disabilities; D013727:Terminal Care