Archived specimens: a platform for discussion.
To facilitate discussion, this paper describes various types of collections of specimens, their uses in research, types of identifiers, requirements for informed consent, third-party access to samples, recontact, and controversial ethical and social issues. There is need for public opinion research on people's views of these issues, with particular attention to the views of minority groups.
Wertz
D C
DC
Division of Social Science, Ethics, and Law, The Shriver Center, 200 Trapelo Road, Waltham, MA 02452. dwertz@shriver.org
D018070:Biological Specimen Banks / Q000592:standards; D035843:Biomedical Research; D003219:Confidentiality; D030561:Databases, Nucleic Acid; D033002:Duty to Recontact; D005820:Genetic Testing; D033161:Government Regulation; D006805:Human Experimentation; D006801:Humans; D007258:Informed Consent; D014019:Tissue Donors; D014481:United States