title: The perceptions of Lutheran pastors toward prenatal genetic counseling and pastoral care.
abstract: The purpose of this study is to explore a theological perspective toward genetic counseling. A survey was sent to 207 ministers within the Evangelical Lutheran Church of America (ELCA), to determine their perspectives toward four different scenarios in a prenatal genetic counseling setting. The four different scenarios included situations involving Huntington disease, Down syndrome, trisomy 18, and anencephaly. Nearly all ELCA Lutheran pastors perceived genetic counseling as beneficial and useful and wanted to be involved in the decision-making process for whether or not to terminate pregnancy. Their views toward termination of pregnancy varied depending on the severity of the genetic abnormality. Severity in this study was based upon life compatibility. As the severity of the genetic abnormality increased, the percentage of Lutheran pastors who viewed termination as an option increased from 23% (Down syndrome) to 62% (anencephaly). A better understanding of how spiritual leaders view genetic counseling would provide an insight into how genetics and religious beliefs together play a significant role in shaping the decisions of those faced with abnormal pregnancies.
authors.affiliation: IU Department of Medical and Molecular Genetics, IU Genetic Counseling Program, Indianapolis, Indiana.
authors.forename: J
authors.initials: J
authors.lastname: Stuck
authors.forename: J
authors.initials: J
authors.lastname: Faine
authors.forename: A
authors.initials: A
authors.lastname: Boldt
mesh_terms: D000025:Abortion, Eugenic; D000757:Anencephaly; D001290:Attitude; D002977:Clergy; D004314:Down Syndrome; D005817:Genetic Counseling; D006801:Humans; D006816:Huntington Disease; D007196:Indiana; D007629:Kentucky; D010327:Pastoral Care; D011296:Prenatal Diagnosis; D033303:Protestantism; D012720:Severity of Illness Index; D014314:Trisomy