title: The impact and management of cancer-related fatigue on patients and families.
abstract: Fatigue has been identified as both a chronic and recurrent problem for individuals diagnosed with and treated for cancer, yet there is little information on how to manage the impact of fatigue. Describing what happens to individuals and their families as a result of fatigue and identifying what individuals do to manage or reduce the impact of fatigue are essential elements in determining multidimensional nursing interventions. The purpose of this pilot study was to examine the impact of fatigue on individuals with cancer of the lung and their families, and explore how they managed as a result of the fatigue. A semi-structured interview guide was used with 22 lung cancer patients and 14 family members six weeks post completion of radiation therapy. Results indicated that fatigue was not reported as a major concern by many of the participants in this study. For those who did experience fatigue, it was considered an inconvenience and a frustration that had to be dealt with for a limited time period. Some patients appeared to gradually adjust and accommodate to the fatigue and were not really aware of the changes that took place over time. Over half of the family members felt more of the impact of fatigue than did their loved ones. Family subtly assumed or took over responsibilities and activities the patient could no longer perform. The symptom of fatigue has been well documented in the cancer experience as both a chronic and recurrent problem for individuals diagnosed with and treated for cancer. The emphasis of previous work has been on deriving a conceptual definition of fatigue, achieving consensus on a definition, and developing theoretical frameworks to guide further study of this complex construct. Fatigue has been conceptualized as a multidimensional phenomenon, attributable to multiple causes and having a negative effect on quality of life (Piper, 1993; Tiesinga, Dasson, & Halfens, 1996). Describing what happens to individuals and their families as a result of fatigue and identifying what individuals do to manage or reduce the effects caused by the fatigue are essential elements in determining multidimensional nursing interventions.
authors.affiliation: Queen Elizabeth II (QEII) Health Sciences Centre, Halifax, Nova Scotia.
authors.forename: J
authors.initials: J
authors.lastname: Hamilton
authors.forename: L
authors.initials: L
authors.lastname: Butler
authors.forename: H
authors.initials: H
authors.lastname: Wagenaar
authors.forename: T
authors.initials: T
authors.lastname: Sveinson
authors.forename: K A
authors.initials: KA
authors.lastname: Ward
authors.forename: L
authors.initials: L
authors.lastname: McLean
authors.forename: D
authors.initials: D
authors.lastname: Grant
authors.forename: F
authors.initials: F
authors.lastname: MacLellan
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D000369:Aged, 80 and over; D002908:Chronic Disease; D005192:Family Health; D005221:Fatigue / Q000209:etiology / Q000451:nursing*; D005260:Female; D006801:Humans; D008175:Lung Neoplasms / Q000150:complications* / Q000601:surgery; D008297:Male; D008875:Middle Aged; D010865:Pilot Projects; D011788:Quality of Life