title: Caring for dying infants: experiences of neonatal intensive care nurses in Hong Kong.
abstract: Ten registered nurses working in a neonatal intensive care unit in Hong Kong were interviewed to explore their experiences of caring for infants whose disease is not responsive to curative treatment, their perceptions of palliative care, and factors influencing their care. Eight categories emerged from the content analysis of the interviews: disbelieving; feeling ambivalent and helpless; protecting emotional self; providing optimal physical care to the infant; providing emotional support to the family; expressing empathy; lack of knowledge and counselling skills; and conflicting values in care. The subtle cultural upbringing and socialization in nurse training and workplace environment also contributed to their moral distress. Hospital and nurse administrators should consider different ways of facilitating palliative care in their acute care settings. For example, by culture-specific death education, peer support groups, bereavement teams, modification of departmental policies, and a supportive work environment. Future research could include the identification of family needs and coping as well as ethical decision-making among nurses.
authors.affiliation: Department of Nursing, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, NT. bernardyam@cuhk.edu.hk
authors.forename: B M
authors.initials: BM
authors.lastname: Yam
authors.forename: J C
authors.initials: JC
authors.lastname: Rossiter
authors.forename: K Y
authors.initials: KY
authors.lastname: Cheung
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001291:Attitude of Health Personnel; D001294:Attitude to Health / Q000208:ethnology; D002055:Burnout, Professional / Q000208:ethnology / Q000209:etiology / Q000517:prevention & control* / Q000523:psychology*; D002983:Clinical Competence / Q000592:standards; D003220:Conflict, Psychological; D004645:Empathy; D005190:Family / Q000523:psychology; D005260:Female; D006117:Grief; D007722:Health Knowledge, Attitudes, Practice; D006723:Hong Kong; D006801:Humans; D007231:Infant, Newborn; D015931:Intensive Care, Neonatal / Q000379:methods / Q000523:psychology*; D017283:Neonatal Nursing / Q000379:methods; D015404:Nursing Methodology Research; D009741:Nursing Staff, Hospital / Q000523:psychology*; D016272:Occupational Health; D012657:Self-Help Groups; D012951:Socialization; D011795:Surveys and Questionnaires; D013727:Terminal Care / Q000379:methods / Q000523:psychology*