Through the community looking glass: reevaluating the ethical and policy implications of research on adolescent risk and sociopathology.
Drawing on a conception of scientists and community members as partners in the construction of ethically responsible research practices, this article urges investigators to seek the perspectives of teenagers and parents in evaluating the personal and political costs and benefits of research on adolescent risk behaviors. Content analysis of focus group discussions involving over 100 parents and teenagers from diverse ethnic and socioeconomic backgrounds revealed community opinions regarding the scientific merit, social value, racial bias, and participant and group harms and benefits associated with surveys, informant reports, intervention studies, blood sampling, and genetic research on youth problems. Participants comments highlight new directions for socially responsible research.
Fisher
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Center for Ethics Education, Psychology Department, Fordham University, Dealy Hall, 441 East Fordham Road, Bronx, NY 10458. fisher@fordham.edu
Wallace
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D000293:Adolescent; D000294:Adolescent Behavior; D035841:Behavioral Research; D003256:Community Participation; D035061:Control Groups; D032984:Ethics, Research; D017144:Focus Groups; D005824:Genetics, Behavioral; D006801:Humans; D008913:Minority Groups; D009519:New York City; D010290:Parents; D011287:Prejudice; D012107:Research Design; D012309:Risk-Taking; D013334:Students; D020458:Third-Party Consent; D035502:Trust