title: No going back: narratives by close relatives of the braindead patient.
abstract: The aim of this narrative study was to illuminate the meaning of being a relative of a patient diagnosed as brain dead. This has so far been explored only to a limited extent. By phenomenological-hermeneutic analysis of 14 narratives, a chronological narrative in 4 steps was identified: the disquieting event; the uncertain vigil; the arduous struggle; and the difficult road ahead. From the analysis, the metaphor of an inner journey emerged, starting from a life situation taken for granted and experienced as safe, and moving towards the unknown, the unfamiliar. During the journey, a series of events of decisive importance in the relative's life were found to take place. Major stages along the road were efforts made to comprehend the reality of death, saying farewell and taking leave of the loved one. The importance of the ICU nurse taking part in the relative's inner journey is discussed in relation to Eriksson's theory of suffering and Martinsen's theory of caring. Implications and suggestions for nursing care activities are discussed.
authors.affiliation: Department of Anaesthesiology and Intensive Care, and Institute of Nursing, University of Göteborg, Sweden. ingvar.frid@fhs.gu.se
authors.forename: I
authors.initials: I
authors.lastname: Frid
authors.forename: I
authors.initials: I
authors.lastname: Bergbom
authors.forename: H
authors.initials: H
authors.lastname: Haljamäe
mesh_terms: D001601:Bereavement; D001926:Brain Death; D005192:Family Health; D006117:Grief; D006801:Humans; D007362:Intensive Care Units; D007398:Interpersonal Relations; D008962:Models, Theoretical; D024802:Nurse's Role