title: [Psychooncological aspects in the care of females in HNPCC families].
abstract: HNPCC families are characterized by a genetic predisposition for colorectal and other cancers. In Düsseldorf we pursue an interdisciplinary counselling approach (geneticists, psychologists and surgeons). Apart from the genetic counselling itself, special emphasis is placed on the benefits of surveillance and screening recommendations. In this pilot study we were interested in investigating if the counselled women had understood the increased risk of gynecological cancers and correspondingly underwent the intensified screening modalities. We selected the approach of a telefone interview and encountered broad acceptance for contacting persons this way. Affected women are better compliant to screening recommendations than women at risk. Both groups consider colonoscopy more strainful than gynecological surveillance. A regular transvaginal ultrasound is not performed in some 40 % of at risk women although 2/3 of them see their gynecologist in regular intervals. Given the support of gynecologists a higher rate of transvaginal ultrasound in women at risk should be achievable.
authors.affiliation: Klinisches Institut für Psychosomatische Medizin und Psychotherapie, Germany. hoewer@med.uni-duesseldorf.de
authors.forename: Sybille
authors.initials: S
authors.lastname: Höwer
authors.forename: Gabriela
authors.initials: G
authors.lastname: Möslein
authors.forename: A
authors.initials: A
authors.lastname: Unger
authors.forename: T
authors.initials: T
authors.lastname: Vogel
authors.forename: T
authors.initials: T
authors.lastname: Goecke
authors.forename: L
authors.initials: L
authors.lastname: Alberti
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D003123:Colorectal Neoplasms, Hereditary Nonpolyposis / Q000523:psychology*; D005260:Female; D005833:Genital Neoplasms, Female / Q000235:genetics / Q000523:psychology*; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008403:Mass Screening / Q000523:psychology; D008875:Middle Aged; D010342:Patient Acceptance of Health Care / Q000523:psychology; D010348:Patient Care Team; D012803:Sick Role