title: Advance directives and dementia.
abstract: Since the 1990 Patient Self-Determination Act, increasing numbers of adults are completing advance directives (ADs), but unfortunately many adults seen in a dementia evaluation program have not completed an AD. This article discusses the issue of individuals with dementia completing ADs. Situational factors that frame this issue are the stage of dementia, degree of certainty of an individual's wishes for end-of-life care, the decision-making act required by care providers, and the degree of contentment or distress experienced by an individual with dementia. Several investigators have demonstrated successful completion of ADs by individuals with mild and moderate dementia. A nurse's knowledge about the stages of dementia is essential to helping an individual through the AD decision-making process. Nurses caring for individuals with dementia should assess decision-making context; recognize the emotions of family, friends, and staff; understand the substance and logic of AD requests; and support individuals and their decisions.
authors.affiliation: University of Kansas School of Nursing, Kansas City 66160-7502, USA.
authors.forename: V F
authors.initials: VF
authors.lastname: Rempusheski
authors.forename: A C
authors.initials: AC
authors.lastname: Hurley
mesh_terms: D016223:Advance Directives / Q000331:legislation & jurisprudence; D000368:Aged; D001291:Attitude of Health Personnel; D001293:Attitude to Death; D001294:Attitude to Health; D003142:Communication; D003299:Cooperative Behavior; D003657:Decision Making; D003704:Dementia / Q000145:classification / Q000451:nursing* / Q000523:psychology*; D004993:Ethics, Nursing; D005190:Family / Q000523:psychology; D015577:Geriatric Assessment; D005851:Geriatric Nursing / Q000331:legislation & jurisprudence / Q000379:methods / Q000592:standards; D006801:Humans; D016743:Mental Competency; D009730:Nursing Assessment; D010344:Patient Advocacy / Q000331:legislation & jurisprudence; D010348:Patient Care Team; D010353:Patient Education as Topic; D011368:Professional-Family Relations; D012720:Severity of Illness Index; D013727:Terminal Care / Q000331:legislation & jurisprudence / Q000379:methods / Q000523:psychology / Q000592:standards; D014481:United States