title: Dynamically fluctuating hope, despair and hopelessness along the HIV/AIDS continuum as described by caregivers in voluntary organizations in Finland.
abstract: The purpose of this study was to describe the dynamics of hope in a) people fearing a diagnosis of HIV or living with HIV/AIDS and b) their significant others, from the perspective of caregivers working in voluntary organizations in Finland. Individual interviews with eight caregivers were analysed using the grounded theory method. Living with the fluctuating waves of hope, despair, and hopelessness based on factors constructing them emerged as the core category describing the dynamics of hope in a person fearing a diagnosis of HIV, becoming aware of HIV contagion, and living with HIV/AIDS. Mirroring the fluctuating waves of hope, despair, and hopelessness based on factors constructing them emerged as the core category describing the dynamics of hope in a significant other of a person fearing a diagnosis of HIV, or living with HIV/AIDS. It is important to take into consideration the dynamics of hope in taking care of people fearing a diagnosis of HIV or living with HIV/AIDS and their significant others.
authors.affiliation: University of Kuopio, Department of Nursing Science, P.O. Box 1627, 70211 Kuopio, Finland. Jari.Kylma@uku.fi
authors.forename: J
authors.initials: J
authors.lastname: Kylmä
authors.forename: K
authors.initials: K
authors.lastname: Vehviläinen-Julkunen
authors.forename: J
authors.initials: J
authors.lastname: Lähdevirta
mesh_terms: D000163:Acquired Immunodeficiency Syndrome / Q000523:psychology*; D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D005260:Female; D005387:Finland; D015658:HIV Infections / Q000523:psychology*; D006801:Humans; D008297:Male; D008875:Middle Aged; D009042:Motivation; D012803:Sick Role; D014837:Voluntary Health Agencies