title: Evaluation of a weekend respite program for persons with Alzheimer disease.
abstract: The documented under-use of respite programs in the face of unmet family caregiver needs is puzzling. The purpose of this study was to explore family caregivers' experience with a pilot respite program of weekend care for persons with Alzheimer disease (AD) or a related dementia. The goal-free evaluation approach captured the responses of 18 family caregivers to a pilot program developed by a community nursing organization. A content analysis of the caregiver interviews identified 3 categories: caregiver self-care, relief for the caregiver, and safety and comfort of the family member. The results suggest a link between the family caregiver achieving respite and the safety and comfort of the family member. The caregivers' perspective regarding the costs and benefits of respite influences the frequency with which they use the program. Research implications are discussed.
authors.affiliation: School of Nursing, University of British Columbia, Vancouver, Canada. perry@nursing.ubc.ca
authors.forename: J
authors.initials: J
authors.lastname: Perry
authors.forename: K
authors.initials: K
authors.lastname: Bontinen
mesh_terms: D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D000544:Alzheimer Disease / Q000451:nursing*; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology*; D003152:Community Health Nursing; D017281:Cost of Illness; D003362:Cost-Benefit Analysis; D005190:Family / Q000523:psychology*; D005260:Female; D006302:Health Services Research; D006801:Humans; D008297:Male; D008875:Middle Aged; D015404:Nursing Methodology Research; D017063:Outcome Assessment, Health Care; D010865:Pilot Projects; D016730:Program Development; D015397:Program Evaluation; D012144:Respite Care / Q000458:organization & administration* / Q000706:statistics & numerical data; D012648:Self Care / Q000379:methods / Q000523:psychology; D011795:Surveys and Questionnaires