[Ethics and long-term nutritional support in children].
Since its outset, parenteral nutrition has led to deep ethical thinking. These interrogations have increased over the last 30 years when faced with the problems brought about by the concept of intestinal failure and parenteral nutrition dependence, by the quality of life of these children and the endeavors to wean them from this artificial nutrition at the price of major therapeutic innovation. Thirty years later, regulated programs of home parenteral nutrition and of intestinal (and liver) transplantation instigate new ethical interrogations. It is the expert's responsibility to take these points into account when making strategic choices which he will then discuss with the families.
Ricour
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Unité de gastroentérologie et nutrition pédiatriques, Fédération de pédiatrie, hôpital Necker-Enfants Malades, 149, rue de Sèvres, 75743 Paris, France. claude.ricour@nck.ap-hop-paris.fr
D002648:Child; D002669:Child Welfare; D003657:Decision Making; D004992:Ethics, Medical; D005192:Family Health; D006801:Humans; D010289:Parenteral Nutrition, Total / Q000592:standards*; D011788:Quality of Life