Becoming a partner in your healthcare.
Chronic disorders such as haemophilia and von Willebrand disease can rob people of a feeling of control over their lives. Added to this is often a feeling of confusion or intimidation when dealing with the healthcare system. People may begin to feel like victims of their disorders and of the healthcare system. The healthcare system defines people who are in receipt of care as patients. The word patient comes from the Latin word patiens, which means to suffer, endure, allow, permit or undergo. Even the term implies a sense of victimization. People who become partners in their care and view the receipt and delivery of healthcare as a service wherein they are the consumer and the doctor or clinician is the provider, will feel more in control and will likely have better outcomes than people who assume the more traditional role of 'patient'.
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Hemophilia Foundation of Nevada, Henderson, Nevada 89009, USA. hfnv@earthlink.net
D003142:Communication; D017408:Guidelines as Topic; D006467:Hemophilia A; D006801:Humans; D026684:Personal Autonomy; D010817:Physician-Patient Relations / Q000941:ethics; D011788:Quality of Life