title: Coping and caring in different ways: understanding and meaningful involvement.
abstract: The experience of having a baby in the neonatal intensive care unit (NICU) is frightening and creates uncertainty for families. Each parent copes with the challenge in his or her own way. Nurses can play an important role in helping parents find their own unique paths to meaningful involvement in caring for their infant by utilizing five frameworks in the assessment and planning process. The frameworks include: (a) family-centered care, (b) a cultural context, (c) loss and grief issues, (d) personal style considerations, and (e) reflections on the caregiver's own value system. The stories of three families illustrate individual coping styles and the application of these frameworks in understanding family coping in the NICU. A list of suggested questions identifying family background and strengths can assist in applying the five frameworks in assessment. A list of areas of potential parental involvement can assist nurses in helping families determine the ways in which they would like to be involved in their infant's care while in the NICU.
authors.affiliation: Parent Partners Program, George Washington University Hospital, Washington, DC, USA.
authors.forename: N
authors.initials: N
authors.lastname: Sydnor-Greenberg
authors.forename: D
authors.initials: D
authors.lastname: Dokken
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D007235:Infant, Premature, Diseases / Q000451:nursing / Q000523:psychology; D015931:Intensive Care, Neonatal / Q000523:psychology*; D008297:Male; D024802:Nurse's Role; D009730:Nursing Assessment; D010290:Parents / Q000523:psychology*; D010347:Patient Care Planning; D011368:Professional-Family Relations