Community entry in conducting rural focus groups: process, legitimacy, and lessons learned.
This article explores the value of community collaboration in a qualitative study of diabetes. In 1999, the Appalachian Diabetes Coalition of West Virginia University's Prevention Research Center employed a statewide effort to conduct focus groups in West Virginia to elicit cultural perspectives on diabetes and its management. The success of this research depended on community participation at many levels, particularly because of the rural, often geographically isolated community structure of the state. The researchers' entry into small communities and the involvement of local residents in focus groups was possible with the collaboration of the West Virginia Rural Health Education Partnerships program and the West Virginia University Extension Service, both of which played primary roles as community gatekeepers in helping the research team access and involve rural areas. This collaboration reinforced the value of a two-tiered approach in enlisting local resources. These relationships resulted in beneficial outcomes to all partners. Researchers benefited by gaining entry to communities, and the community organizations benefited by gaining a better understanding of the diabetic population to assist in planning programs. Working with well-established community groups with strong community ties is crucial when gaining entry for research and interventions. The identification and involvement of trusted, accessible members of rural communities gives research local legitimacy, ensures adequate participation and effective data collection, and permits entry into remote communities.
Smith
Shannon L
SL
Wake Forest University School of Medicine, Department of Public Health Sciences, Winston-Salem, NC 27157, USA.
Blake
Kelly
K
Olson
Carol R
CR
Tessaro
Irene
I
D018672:Community Health Planning / Q000458:organization & administration*; D003256:Community Participation; D003159:Community-Institutional Relations; D003299:Cooperative Behavior; D003920:Diabetes Mellitus / Q000517:prevention & control*; D017144:Focus Groups / Q000379:methods*; D006302:Health Services Research; D006801:Humans; D011315:Preventive Medicine / Q000458:organization & administration*; D012423:Rural Health; D014903:West Virginia