title: Identification of quality of life concerns of patients with obstructive sleep apnoea at the time of initiation of continuous positive airway pressure: a discourse analysis.
abstract: BACKGROUND
  Obstructive sleep apnoea syndrome (OSAS) is a common condition with multiple symptoms dominated by daytime somnolence. Thus many worries and concerns of patients remain hidden. Treatment by nasal continuous positive airway pressure (CPAP) can be imposing for the individual. An analysis of the freely expressed concerns of such patients is required.
  
  
  OBJECTIVE
  To seek an in-depth analysis of how patients live with sleep apnoea by allowing them an open discourse and analysing the text of their statements.
  
  
  METHODS
  A trained psychologist conducted semi-directive interviews with patients attending a pulmonary rehabilitation and convalescent unit around the themes of sleep, health and treatment. An analysis of content and of discourse was carried out by textual analysis and by propositional analysis of discourse (PAD) with the aid of dedicated computer programs (Tropes, Sphinx Lexica).
  
  
  RESULTS
  Thirty patients with severe sleep apnoea were interviewed of whom 15 were initiating treatment with CPAP. Patients spoke of abnormal fatigue (22 mentions) and somnolence (21 times). Many have problems with obesity (25 instances), snoring related problems (12). There were 30 mentions of depression with a relationship to alcohol and anti-depressives. Twenty six times the theme of nocturnal waking was raised. There were many instances of problems with CPAP (nasal mask and noise problems raised 21 times). Patients have problems with relationships and sex because of OSAS. Other concerns were loss of memory and fear of dying.
  
  
  CONCLUSIONS
  In a non-directed conversation OSAS patients express concerns not revealed in the standard medical paradigm and such concerns should be addressed in assessing treatment or evaluating quality of life (QOL).
authors.affiliation: Sleep Laboratory, CHU Grenoble, Centre Pneumologie, Henri Bazire, France. dan.veale@wanadoo.fr
authors.forename: D
authors.initials: D
authors.lastname: Veale
authors.forename: G
authors.initials: G
authors.lastname: Poussin
authors.forename: F
authors.initials: F
authors.lastname: Benes
authors.forename: J L
authors.initials: JL
authors.lastname: Pepin
authors.forename: P
authors.initials: P
authors.lastname: Levy
mesh_terms: D000328:Adult; D005260:Female; D005602:France; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D018434:Sickness Impact Profile; D012891:Sleep Apnea Syndromes / Q000503:physiopathology* / Q000523:psychology