title: Health services research for children with disabilities.
abstract: Growing numbers of children and adolescents have long-term disabilities. Research on the epidemiology, clinical care and its improvement, organization, and financing of care for children with disabilities is very limited. Given the cost burden of the nation's chronic diseases and disabilities, the lack of investigation into necessary clinical activities seems remarkable. This article reviews recent research on health services relating to children and adolescents with disabilities and outlines a research agenda in clinical and health services for this population in these study areas.
authors.affiliation: Harvard Medical School, USA. perrin.james@mgh.harvard.edu
authors.forename: James M
authors.initials: JM
authors.lastname: Perrin
mesh_terms: D000293:Adolescent; D002648:Child; D002662:Child Health Services / Q000458:organization & administration*; D002675:Child, Preschool; D003695:Delivery of Health Care / Q000458:organization & administration*; D019988:Children with Disabilities / Q000706:statistics & numerical data; D005102:Health Expenditures / Q000706:statistics & numerical data; D006297:Health Services Accessibility / Q000458:organization & administration; D006301:Health Services Needs and Demand / Q000191:economics / Q000458:organization & administration; D006302:Health Services Research; D006801:Humans; D007255:Information Services / Q000458:organization & administration; D010043:Outcome and Process Assessment, Health Care / Q000379:methods; D011785:Quality Assurance, Health Care / Q000379:methods; D014481:United States