title: The development of a new site-specific measure of quality of life for breast problems: the Cardiff breast scales.
abstract: The management of women presenting to primary care with symptoms of breast disease is of increasing interest given recent organisational changes aimed at improving accuracy and speed of referrals. As part of a randomised controlled trial, 1063 women were recruited following a primary care consultation for a variety of breast-related problems. In the absence of a suitable outcome measure for such women, a site-specific instrument was developed to complement a generic quality of life scale (SF-36). Items were generated using key informant interviews with health professionals. Draft scale items were piloted using a postal questionnaire and subsequent patient debrief interviews. A sample of respondents were also sent the same questionnaire I month later to assess test-retest reliability. Across the whole sample (n = 848), three factors were identified: 'general well-being', 'concerns' and 'relationships'. These factors accounted for 60% of total variance. Evidence of scale validity, reliability and responsiveness are reported for this new outcome measure for use in women presenting with breast problems.
authors.affiliation: Department of General Practice, University of Wales College of Medicine, Llanedeyrn Health Centre, Cardiff, UK. roblingmr@cardiff.ac.uk
authors.forename: M
authors.initials: M
authors.lastname: Robling
authors.forename: S J
authors.initials: SJ
authors.lastname: Matthews
authors.forename: K
authors.initials: K
authors.lastname: Hood
authors.forename: I T
authors.initials: IT
authors.lastname: Russell
authors.forename: R
authors.initials: R
authors.lastname: Holloway
authors.forename: C
authors.initials: C
authors.lastname: Wilkinson
authors.forename: A G K
authors.initials: AG
authors.lastname: Edwards
authors.forename: J
authors.initials: J
authors.lastname: Austoker
authors.forename: D
authors.initials: D
authors.lastname: Cohen
authors.forename: R
authors.initials: R
authors.lastname: Mansel
authors.forename: R M
authors.initials: RM
authors.lastname: Pill
authors.forename: N C H
authors.initials: NC
authors.lastname: Stott
authors.forename: A
authors.initials: A
authors.lastname: Thapar
mesh_terms: D001941:Breast Diseases / Q000503:physiopathology* / Q000523:psychology*; D005194:Family Practice; D005260:Female; D006801:Humans; D017063:Outcome Assessment, Health Care; D010865:Pilot Projects; D011788:Quality of Life; D018434:Sickness Impact Profile; D011795:Surveys and Questionnaires; D006113:United Kingdom