Genetic research and the vulnerability of Native Hawaiians.
Traditional research ethics are unable to provide adequate protections for human subjects involved in research--much less genetic research. New principles need to be developed to change the paradigm and put human research subjects in a more equitable relationship with their researchers. In addition, new laws should be crafted to level the playing field for human research participants. Humans can no longer look at themselves as hereditary beings, but as stewards of intra- and inter-generational genetic material in need of protection. Recommendations are provided.
Hui No Ke Ola Pono, The Native Hawaiian Health Care System, Maui, Wailuku, USA. huino@shaka.com
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Chang
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Lowenthal
D004989:Ethics; D005006:Ethnicity / Q000235:genetics*; D005823:Genetics / Q000331:legislation & jurisprudence / Q000592:standards*; D006254:Hawaii; D006805:Human Experimentation; D006806:Human Rights; D006801:Humans; D007258:Informed Consent; D008913:Minority Groups