title: Involving people with severe mental illness in evaluation and performance improvement.
abstract: This article argues for the increased involvement of people with severe mental illness and consumers of other health and mental health services in evaluation and performance improvement in the organizations from which they receive services. Among other reasons, consumers can bring a different perspective to the selection of areas to evaluate, such involvement is consistent with some models of program evaluation, and the process of participation itself can be empowering to consumers. Based on a review of the literature and the experiences of a public psychiatric hospital in involving consumers in evaluation and performance improvement, the authors exemplify how mental health consumers can participate in each stage of the evaluation process, ranging from the initial stage of posing evaluation questions to the final stage of acting on evaluation findings. Next, challenges to consumer involvement are described. Guidelines are then offered for involving consumers of health and mental health services in evaluation and performance improvement.
authors.affiliation: Saint Louis University, USA.
authors.forename: Donald M
authors.initials: DM
authors.lastname: Linhorst
authors.forename: Anne
authors.initials: A
authors.lastname: Eckert
mesh_terms: D003256:Community Participation / Q000379:methods*; D006302:Health Services Research / Q000379:methods*; D006801:Humans; D008605:Mental Health Services / Q000458:organization & administration*; D019989:Persons with Intellectual Disabilities