title: What are Pakistani women's experiences of antenatal carrier screening for beta-thalassaemia in the UK? Why it is difficult to answer this question?
abstract: In the UK antenatal screening of Pakistani women for thalassaemia carrier status is commonplace. This paper describes our attempts to investigate women's experiences of such screening and the reasons why this proved difficult to do. These included a pregnancy per year and communications failure between different health professionals involved in antenatal haemoglobinopathy screening. These issues have implications for the way in which such screening is conducted and these are discussed.
authors.affiliation: Academic Unit of Psychiatry and Behavioural Sciences, University of Leeds, Leeds, UK. meedsahm@leeds.ac.uk
authors.forename: S
authors.initials: S
authors.lastname: Ahmed
authors.forename: J
authors.initials: J
authors.lastname: Green
authors.forename: J
authors.initials: J
authors.lastname: Hewison
mesh_terms: D003955:Diagnostic Tests, Routine; D005260:Female; D006580:Genetic Carrier Screening; D005817:Genetic Counseling; D005820:Genetic Testing; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008511:Medicine / Q000592:standards; D010154:Pakistan / Q000208:ethnology; D017060:Patient Satisfaction / Q000208:ethnology*; D011247:Pregnancy; D011296:Prenatal Diagnosis; D013038:Specialization; D011795:Surveys and Questionnaires; D006113:United Kingdom; D017086:beta-Thalassemia / Q000097:blood / Q000235:genetics*