A model for transition from pediatric to adult care in cystic fibrosis.
With improved medical technology, many chronic medical conditions of childhood are now recognized as conditions of childhood onset. Appropriate treatment of these conditions in the adult patient is required. The pediatric setting is not appropriate in terms of philosophy, service delivery, and relationship with the patient. To design a suitable transition protocol, a survey of teenage patients with cystic fibrosis was carried out and the process was discussed with the relevant clinicians. The results of the survey indicated that young people identified transition to an adult service as necessary and accepted, provided that good preparation is given from the pediatric setting. This article provides a detailed example of a model of transition for cystic fibrosis services to encourage practice and evaluation of provision.
Madge
Susan
S
Respiratory Unit, Great Ormond Street Hospital for Children, London, UK. s.madge@rbh.nthames.nhs.uk
Bryon
Mandy
M
D000293:Adolescent; D000328:Adult; D003266:Continuity of Patient Care; D003550:Cystic Fibrosis / Q000628:therapy*; D019468:Disease Management; D005260:Female; D006801:Humans; D008131:London; D008297:Male; D017146:Models, Organizational