title: Parents' perspectives of health-care delivery to their chronically ill children during school.
abstract: This study sought to identify parents' perspectives about issues relating to the provision of health care to their chronically ill children while they are at school. A survey of parents with school-aged children attending the paediatric subspecialty outpatients clinic in a large teaching hospital was designed to collect both qualitative and quantitative data about this topic. Findings included that 48% (n =161) of parents participating in the study said their child required some form of care or attention while at school. Highest scoring areas of need included supervision of meals (36%), administering insulin (19%), and administering nebulizers/puffers (19%). In addition, 75% of parents with children requiring health care while in school said that special knowledge and skill was required to deliver this care; 56% of these parents did not feel that teachers had the knowledge that would enable them too look after their chronically ill child during school hours.
authors.affiliation: Paediatric Gastroenterology, John Hunter Children's Hospital, Newcastle, New South Wales, Australia. elizabeth.notaras@hunter.health.nsw.gov.au
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Notaras
authors.forename: Diana
authors.initials: D
authors.lastname: Keatinge
authors.forename: James
authors.initials: J
authors.lastname: Smith
authors.forename: Judith
authors.initials: J
authors.lastname: Cordwell
authors.forename: Dianne
authors.initials: D
authors.lastname: Cotterell
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Nunn
mesh_terms: D000293:Adolescent; D001294:Attitude to Health; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease / Q000628:therapy*; D002983:Clinical Competence / Q000592:standards; D003695:Delivery of Health Care / Q000592:standards; D005178:Faculty / Q000592:standards; D005260:Female; D006801:Humans; D008297:Male; D020380:Needs Assessment; D009517:New South Wales; D015403:Nursing Evaluation Research; D015404:Nursing Methodology Research; D010290:Parents / Q000523:psychology*; D012572:School Health Services / Q000592:standards*; D012573:School Nursing / Q000592:standards*; D011795:Surveys and Questionnaires