title: Response of patients and families to lengthening of the facial bones by extraoral distraction osteogenesis: a review of 14 patients.
abstract: Fourteen patients or their immediate family were interviewed about their experiences of having either unilateral or bilateral external distraction osteogenesis of the mandible. The patients showed a high level of co-operation with treatment. Six of the 14 patients required repeat distractions, and had been informed and accepted that this was a possibility before the initial distraction. However, patients or their parents expressed some reservations about the extraoral distractors, which prevented them from practising their favourite sport and made them vulnerable to bullying by their friends and colleagues. Patients had moderate pain when the appliances were removed. They all expressed their satisfaction with the results and would recommend this treatment to others. Problems, including speech, eating, pain, and sleeping difficulties, were encountered by patients at all stages of treatment. Of considerable concern was the disruption of education when the child was treated during the school term.
authors.affiliation: Biotechnology and Craniofacial Research Section, Department of Oral and Maxillofacial Surgery, Glasgow Dental Hospital and School, 378 Sauchiehall Street, Glasgow G2 3JZ, UK. a.f.ayoub@dental.gla.ac.uk
authors.forename: A F
authors.initials: AF
authors.lastname: Ayoub
authors.forename: C M
authors.initials: CM
authors.lastname: Duncan
authors.forename: G R
authors.initials: GR
authors.lastname: McLean
authors.forename: K F
authors.initials: KF
authors.lastname: Moos
authors.forename: P D
authors.initials: PD
authors.lastname: Chibbaro
mesh_terms: D000041:Absenteeism; D000203:Activities of Daily Living; D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D019465:Craniofacial Abnormalities / Q000601:surgery; D004435:Eating; D016267:External Fixators / Q000009:adverse effects; D005260:Female; D006801:Humans; D007223:Infant; D008297:Male; D008334:Mandible / Q000601:surgery*; D019186:Mandibular Advancement / Q000009:adverse effects / Q000295:instrumentation* / Q000523:psychology*; D019857:Osteogenesis, Distraction / Q000009:adverse effects / Q000295:instrumentation* / Q000523:psychology*; D010290:Parents / Q000523:psychology; D010349:Patient Compliance; D017060:Patient Satisfaction; D012893:Sleep Wake Disorders / Q000209:etiology; D013064:Speech Disorders / Q000209:etiology; D011795:Surveys and Questionnaires