title: Knowing patients' preferences about organ donation: does it make a difference?
abstract: BACKGROUND
  The purpose of this study was to examine in detail the impact of knowledge of a donor-eligible patient's preferences on organ donation decisions.
  
  
  METHODS
  Nine trauma hospitals located in southwest Pennsylvania and northeast Ohio were selected. Data came from chart review of all dead patients and interviews with family members involved in the decision process (n = 360 patients 16 years of age or older).
  
  
  RESULTS
  Of the families interviewed, 52.5% had to guess the patient's preferences about donation. When making the decision, 81.9% of the families considered how the patient might have felt about donation. Not knowing the patient's wishes related to refusal to donate (54.5% vs. 45.5%, p < 0.001). After adjusting for other factors, important predictors of donation were considering patients' feelings (5.03 times more likely to donate) and knowing preferences (6.90 times more likely to donate if they knew wishes were to donate and 0.03 times less likely to donate if they knew wishes were to not donate compared with not knowing preferences).
  
  
  CONCLUSIONS
  Having knowledge of a patient's preference to donate increased the likelihood of donating by 6.90 times, and having enough information about the patient's wishes increased satisfaction with the decision by 3.32 times. Families only infrequently made decisions counter to patients' own wishes concerning organ donation.
authors.affiliation: School of Medicine, Center for Bioethics, Case Western Reserve University, Cleveland, Ohio 44106, USA. las5@po.cwru.edu
authors.forename: Laura A
authors.initials: LA
authors.lastname: Siminoff
authors.forename: Renee H
authors.initials: RH
authors.lastname: Lawrence
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001290:Attitude; D003657:Decision Making; D005190:Family / Q000523:psychology; D005260:Female; D006801:Humans; D016015:Logistic Models; D008297:Male; D008875:Middle Aged; D015999:Multivariate Analysis; D010358:Patient Participation; D010361:Patients / Q000523:psychology*; D012959:Socioeconomic Factors; D014019:Tissue Donors / Q000523:psychology*