Protecting genetic materials and genetic information: a case study of Guthrie Cards in Victoria.
The authors are privileged to have been provided with correspondence about a dispute over the ongoing storage of genetic material (as Guthrie Cards) in Victoria. The correspondence details confusion over the roles of government and the private sector service provider in accounting for the storage, use and destruction of these stored genetic materials collected as part of a government public health program. The purpose in publishing this account is to highlight the present inadequacies in current practices and the ongoing potential for a crisis in the management of collected genetic materials through a lack of appropriate regulation, transparency and accountability. The article suggests measures to remedy some of the existing inadequacies in contractual arrangements and recommends that the government retain ownership and control of both the genetic materials and the derived information to ensure some accountability in the present legal environment.
Lawson
C
C
Genomic Interactions Group, Research School of Biological Science, Australian National University, Canberra.
Smith
R
R
D003284:Contract Services / Q000331:legislation & jurisprudence; D015709:Correspondence as Topic; D030541:Databases, Genetic / Q000331:legislation & jurisprudence*; D030661:Genetic Privacy / Q000331:legislation & jurisprudence*; D006801:Humans; D009313:National Health Programs / Q000331:legislation & jurisprudence; D010067:Ownership / Q000331:legislation & jurisprudence; D014739:Victoria