title: Important aspects of care and assistance for children 0-7 years of age being treated for cancer. Parent and nurse perceptions.
abstract: Aspects of care and assistance that are important for children aged 0-7 years who are being treated for cancer were examined. Parents ( N=57) and nurses ( N=59) were asked: "What caring aspects are important in ensuring that your child/the child feels cared for?" and "What help, if any, does your child/the child need outside the hospital?". Data were analysed by content analysis. The following aspects of care were identified: amusement, clinical competence, continuity, emotional support, family participation, honest communication, information, participation in decision making, satisfaction of basic needs, social competence, the parents are well cared for, and time. Parents most frequently mentioned social competence and amusement, while nurses most frequently mentioned continuity and information. The following aspects of assistance were identified: accessible care, amusement, emotional support, family life, meeting friends, normal life, practical support, rehabilitation and school support. At least a third of the children did not need any assistance, according to parents and nurses. Parents most frequently mentioned family life, meeting friends and practical support. Nurses most frequently mentioned normal life and family life. Taken together, the results indicate that not only a family but many more people need to be involved to help children with cancer to be cured not only in a biological but also a psychosocial sense.
authors.affiliation: Department of Public Health and Caring Sciences, Section of Caring Science, Uppsala University, Uppsala Science Park, Dag Hammarskjölds väg 10B, S-751 83 Uppsala, Sweden. louise-von.essen@pubcare.uu.se
authors.forename: Louise
authors.initials: L
authors.lastname: von Essen
authors.forename: Karin
authors.initials: K
authors.lastname: Enskär
authors.forename: Kristina
authors.initials: K
authors.lastname: Haglund
authors.forename: Mariann
authors.initials: M
authors.lastname: Hedström
authors.forename: Inger
authors.initials: I
authors.lastname: Skolin
mesh_terms: D000328:Adult; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D004644:Emotions; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000451:nursing* / Q000523:psychology*; D009859:Oncology Nursing / Q000379:methods* / Q000706:statistics & numerical data; D010290:Parents / Q000523:psychology; D011368:Professional-Family Relations; D011788:Quality of Life / Q000523:psychology; D011998:Recreation / Q000523:psychology; D012944:Social Support; D013548:Sweden