title: Women's views of consultations about familial risk of breast cancer in primary care.
abstract: Developments within genetic testing may increase demands on general practitioners to advise about family history of breast cancer (FHBC). This descriptive, qualitative study, investigated women's views of GP consultations about FHBC and their context. Participants were women from the general population who had experienced a primary care consultation in which FHBC was mentioned, as reported by the practitioner. Information about women's views of consultation context was obtained from 72 telephone interviews. More in-depth information about context and women's evaluations of FHBC consultations were obtained from a sub-sample of 20 face to face interviews. FHBC was rarely the main focus of consultations. It featured as a part of an overall discussion of breast symptoms, treatment and cancer risk. Women's understanding of heredity and disease was often idiosyncratic and might differ from biomedical models. A main task for clinicians appeared to be appropriate reassurance. Failure to reassure was linked to a failure to provide explanations at the woman's level of understanding. Clinicians cannot assume that patients share their perceptions of the mechanisms of disease and heredity. Instead they need to ascertain the patient's understanding and provide explanations accordingly. GPs need to have, or access, enough knowledge to inform and reassure.
authors.affiliation: General Practice and Primary Care Research Unit, Institute of Public Health, University of Cambridge, CB2 2SR, Cambridge, UK. geg1001@medschl.cam.ac.uk
authors.forename: Gunn E
authors.initials: GE
authors.lastname: Grande
authors.forename: Fawzia
authors.initials: F
authors.lastname: Hyland
authors.forename: Fiona M
authors.initials: FM
authors.lastname: Walter
authors.forename: Ann Louise
authors.initials: AL
authors.lastname: Kinmonth
mesh_terms: D000328:Adult; D000368:Aged; D001294:Attitude to Health; D001943:Breast Neoplasms / Q000235:genetics*; D005194:Family Practice / Q000592:standards*; D005260:Female; D020022:Genetic Predisposition to Disease / Q000235:genetics*; D006801:Humans; D008875:Middle Aged; D020380:Needs Assessment; D010353:Patient Education as Topic / Q000592:standards; D010819:Physician's Role; D011320:Primary Health Care / Q000592:standards*; D011446:Prospective Studies; D036301:Qualitative Research; D012017:Referral and Consultation / Q000592:standards*; D018570:Risk Assessment; D012307:Risk Factors; D011795:Surveys and Questionnaires; D006113:United Kingdom