title: The patient clinical information system (PatCIS): technical solutions for and experience with giving patients access to their electronic medical records.
abstract: As health records evolve into electronic form, increasing demand is being made to provide patients with access to them. We sought to study the character and impact of such access to determine how patients use such records, what cognitive effects it has on them, and how it affects their relationship with their health care providers. We created the Patient Clinical Information System (PatCIS) to interface with the clinical data repository at New York Presbyterian Hospital (NYPH) to allow patients to add to and review their medical data. We also provided educational resources and automated advice programs. We provided access to the system to thirteen subjects over a 36-month period and reviewed their activities in the system's usage log. We also collected data via questionnaire and telephone interview. We collected data for a total of 223 patient months. We found that patients varied in their use of the system, from once a month or less to one or more times per day. All patients primarily used the system to review laboratory results. Both they and their physicians believed that use of the system enhanced the patients' understanding of their conditions and improved their communication with their physicians. There were no adverse events encountered during the study.
authors.affiliation: Department of Medical Informatics, Columbia University, 622 West 168th Street, VC-5, New York, NY 10032, USA. jjc7@columbia.edu
authors.forename: James J
authors.initials: JJ
authors.lastname: Cimino
authors.forename: Vimla L
authors.initials: VL
authors.lastname: Patel
authors.forename: Andre W
authors.initials: AW
authors.lastname: Kushniruk
mesh_terms: D000328:Adult; D000368:Aged; D005260:Female; D006801:Humans; D007256:Information Systems; D020407:Internet; D007407:Interviews as Topic; D008137:Longitudinal Studies; D008297:Male; D016347:Medical Records Systems, Computerized / Q000706:statistics & numerical data*; D008875:Middle Aged; D009862:Online Systems; D033283:Patient Access to Records; D017060:Patient Satisfaction; D010361:Patients; D010817:Physician-Patient Relations; D012984:Software; D011795:Surveys and Questionnaires; D014584:User-Computer Interface