title: Priorities and satisfaction on the help needed and provided in a first episode of psychosis. A survey in five European Family Associations.
abstract: In the case of a first episode of psychosis among members of different associations of families of mentally ill people, little is known about their priorities and how satisfied they are with the help provided to them. A survey was conducted in five European family associations. Respondents emphasized the need for early (ambulant) intervention through outreach with very practical goals directed at creating stability and social functioning. About one-third of the respondents are unsatisfied or very unsatisfied. The highest percentage of unsatisfied respondents was in the following five areas of care: advice on how to handle specific problems; help with preserving or regaining social functioning; help with regaining structure and routine; information; prompt assistance preferably in patients own environment. The agreement of these findings with findings from earlier studies underlines the importance of suggesting specific changes in the delivery of care.
authors.affiliation: Adolescent Clinic, Academic Medical Center/de Meren, University of Amsterdam, Department of Psychiatry, Postbox 22700 1100 DE, The Netherlands. l.dehaan@amc.uva.nl
authors.forename: L
authors.initials: L
authors.lastname: de Haan
authors.forename: L
authors.initials: L
authors.lastname: Kramer
authors.forename: B
authors.initials: B
authors.lastname: van Raay
authors.forename: M
authors.initials: M
authors.lastname: Weir
authors.forename: J
authors.initials: J
authors.lastname: Gardner
authors.forename: S
authors.initials: S
authors.lastname: Akselson
authors.forename: E
authors.initials: E
authors.lastname: Ladinser
authors.forename: S
authors.initials: S
authors.lastname: McDaid
authors.forename: S
authors.initials: S
authors.lastname: Hernández Dols
authors.forename: L
authors.initials: L
authors.lastname: Wouters
mesh_terms: D000328:Adult; D001317:Austria / Q000453:epidemiology; D003156:Community Mental Health Services / Q000191:economics / Q000600:supply & distribution*; D005192:Family Health; D017048:Health Care Costs; D006292:Health Priorities; D006301:Health Services Needs and Demand; D006801:Humans; D007494:Ireland / Q000453:epidemiology; D008297:Male; D008875:Middle Aged; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D011618:Psychotic Disorders / Q000191:economics / Q000453:epidemiology / Q000628:therapy*; D012606:Scotland / Q000453:epidemiology; D013030:Spain / Q000453:epidemiology; D011795:Surveys and Questionnaires; D013548:Sweden / Q000453:epidemiology; D013997:Time Factors