Genetic privacy.
During the past 10 years, the number of genetic tests performed more than tripled, and public concern about genetic privacy emerged. The majority of states and the U.S. government have passed regulations protecting genetic information. However, research has shown that concerns about genetic privacy are disproportionate to known instances of information misuse. Beliefs in genetic determinacy explain some of the heightened concern about genetic privacy. Discussion of the debate over genetic testing within families illustrates the most recent response to genetic privacy concerns.
Sankar
Pamela
P
Center for Bioethics, University of Pennsylvania, 3401 Market Street, Suite 320, Philadelphia, Pennsylvania 19104-3308, USA. sankarp@mail.med.upenn.edu
D003219:Confidentiality / Q000331:legislation & jurisprudence; D017007:Duty to Warn / Q000331:legislation & jurisprudence; D020022:Genetic Predisposition to Disease / Q000235:genetics; D030661:Genetic Privacy / Q000331:legislation & jurisprudence*; D005820:Genetic Testing / Q000331:legislation & jurisprudence; D006801:Humans; D014342:Truth Disclosure; D014481:United States