title: Race and ethnicity and the identification of special needs children.
abstract: Increasingly, Medicaid and Title XXI Programs are using survey-based approaches to identify children with special health care needs (CSHCN) for quality assurance monitoring and program referrals. However, little work has been done examining how well instruments, like the Questionnaire for Identifying Children with Chronic Conditions and the CSHCN Screener, identify CSHCN among black and Hispanic families. Differences in item interpretation and in response styles could influence the identification of CSHCN from these groups. Our results suggest that children who are black or Hispanic with special health care needs may be underidentified relative to white or non-Hispanic children using currently available survey tools.
authors.affiliation: University of Florida, Department of Pediatrics, 5700 Southwest 34th Street, Suite 323, Gainesville, FL 32608, USA. eas@ichp.edu
authors.forename: E
authors.initials: E
authors.lastname: Shenkman
authors.forename: B
authors.initials: B
authors.lastname: Vogel
authors.forename: R
authors.initials: R
authors.lastname: Brooks
authors.forename: D H
authors.initials: DH
authors.lastname: Wegener
authors.forename: R
authors.initials: R
authors.lastname: Naff
mesh_terms: D000293:Adolescent; D001741:Black or African American / Q000145:classification / Q000706:statistics & numerical data*; D002648:Child; D002662:Child Health Services / Q000706:statistics & numerical data*; D002675:Child, Preschool; D002908:Chronic Disease / Q000453:epidemiology; D019988:Children with Disabilities / Q000145:classification / Q000706:statistics & numerical data*; D005260:Female; D005431:Florida / Q000453:epidemiology; D006305:Health Status Indicators; D006630:Hispanic or Latino / Q000145:classification / Q000706:statistics & numerical data*; D006801:Humans; D008297:Male; D008484:Medicaid / Q000331:legislation & jurisprudence; D020380:Needs Assessment; D012044:Regression Analysis; D011795:Surveys and Questionnaires; D014481:United States / Q000453:epidemiology