title: Living with dementia: caregiver perspectives.
abstract: About four million Americans currently live with Alzheimer's disease (AD) or related forms of dementia. Because the disease process impairs language, insight, and judgment, family members become "caregivers." These caregivers, either in part or in full, often make decisions on patients' behalf. This Issue Brief summarizes a series of studies that describe how caregivers make decisions for AD patients, and caregiver perspectives on the quality of life for relatives with AD.
authors.affiliation: University of Pennsylvania, USA.
authors.forename: Jason H T
authors.initials: JH
authors.lastname: Karlawish
mesh_terms: D000328:Adult; D000544:Alzheimer Disease; D017028:Caregivers / Q000523:psychology*; D002986:Clinical Trials as Topic; D017281:Cost of Illness; D003657:Decision Making; D006291:Health Policy; D006801:Humans; D007258:Informed Consent; D016743:Mental Competency; D017060:Patient Satisfaction; D011057:Politics; D011788:Quality of Life; D035502:Trust; D014481:United States