Making health care decisions without a prognosis: life in a brain trauma unit.
When the author's daughter was hit by a car and remained unconscious for seven months, she found that there were certain factors where traditional ethical theory was not sufficiently nuanced to guide her practical decision making in regard to her daughter's health care. This article concentrates on three of those factors. They are: (1) no reliable prognosis can be offered for many brain-injured individuals; (2) a patient's age and the relationship between the patient and the caregiver affect the context of caring; and (3) there are severe difficulties in obtaining and sustaining chronic care and accessing scarce resources.
Martone
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D000328:Adult; D032721:Adult Children; D000367:Age Factors; D001930:Brain Injuries / Q000534:rehabilitation*; D017028:Caregivers / Q000523:psychology*; D002908:Chronic Disease / Q000534:rehabilitation; D003657:Decision Making / Q000941:ethics; D026690:Ethics, Clinical; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D010287:Parent-Child Relations; D010344:Patient Advocacy; D018458:Persistent Vegetative State / Q000175:diagnosis* / Q000534:rehabilitation*; D011379:Prognosis; D019727:Proxy; D011788:Quality of Life; D040841:Resource Allocation; D012941:Social Responsibility; D028761:Withholding Treatment / Q000191:economics / Q000941:ethics*