title: Respect for the developmentally disabled and forgoing life-sustaining treatment.
abstract: A developmentally disabled person should be treated at all times as a unique individual and not as some anonymous "disabled person." The developmentally disabled should not be subjected to invasive medical treatment that is unduly burdensome or nonbeneficial, or be forced to endure a quality of life not meaningful to them as individuals. They have a right to refuse or accept treatment that a surrogate must exercise on behalf of each individual in a responsible and careful manner. Three cases and a preliminary approach to the ethical analysis of decisions to allow developmentally disabled persons to die by forgoing medical treatment are offered. The "best interests" of a developmentally disabled individual, properly understood, can serve as a useful and ethically defensible standard for determining the ethical propriety of surrogate decision making about forgoing life-sustaining medical treatment of the disabled.
authors.affiliation: Department of Philosophy, Santa Clara University, Santa Clara, California 95053, USA. lnelson@scu.edu
authors.forename: Lawrence J
authors.initials: LJ
authors.lastname: Nelson
mesh_terms: D000293:Adolescent; D000328:Adult; D002658:Developmental Disabilities / Q000523:psychology*; D006233:Persons with Disabilities / Q000523:psychology*; D004750:Enteral Nutrition / Q000523:psychology; D005190:Family / Q000523:psychology; D005260:Female; D006801:Humans; D008021:Life Support Systems / Q000941:ethics*; D008297:Male; D018458:Persistent Vegetative State / Q000523:psychology; D011788:Quality of Life; D012297:Right to Die