title: Rural nonphysician providers' perspectives on palliative care services in northwestern Ontario, Canada.
abstract: Most palliative care in rural remote areas is provided by nonphysicians. This paper reports a survey of interdisciplinary rural health service providers (not including physicians) to identify the strengths and weaknesses in palliative care service delivery in a rural and remote region in northwestern Ontario, Canada. Questionnaires were sent to 156 nurses, homemakers, social workers, and pastoral care workers who care for terminally ill persons and their families, and 122 were completed and returned (response rate 78%). Consistent with practice in most rural areas, 90% of respondents were generalists. Respondents identified several problems with palliative care services, including inadequate training for caregivers, inadequate support services for family and professional caregivers, inadequate human resources, and lack of organized volunteer programs. Suggestions for improvements included better education for service providers; better availability of palliative care services; more counseling and support services for patients, family members, and professionals; and greater availability of respite beds. Overall, respondents rated clients' needs as being better met than their own. The most frequently reported problems for care providers were related to the lack of supports for care provision.
authors.affiliation: Lakehead University, School of Social Work, 955 Oliver Rd, Thunder Bay, ON, Canada. Marylou.Kelley@lakeheadu.ca
authors.forename: Mary Lou
authors.initials: ML
authors.lastname: Kelley
authors.forename: Scott
authors.initials: S
authors.lastname: Sellick
authors.forename: Barb
authors.initials: B
authors.lastname: Linkewich
mesh_terms: D000328:Adult; D000488:Allied Health Personnel / Q000193:education / Q000523:psychology; D001291:Attitude of Health Personnel; D001294:Attitude to Health; D017028:Caregivers / Q000193:education / Q000523:psychology*; D006801:Humans; D008875:Middle Aged; D020380:Needs Assessment; D009864:Ontario; D010166:Palliative Care / Q000592:standards*; D019984:Quality Indicators, Health Care; D019035:Rural Health Services / Q000592:standards*; D013997:Time Factors