title: Percutaneous endoscopic gastrostomy: adequacy and quality of information given to decision makers.
abstract: BACKGROUND
  Nowadays percutaneous endoscopic gastrostomy (PEG) is widely available, but patient-selection criteria and quality of informed consent are debated. The aims of this retrospective study were to evaluate the quality of information given to the decision-makers (relatives) and determine the overall acceptance of the procedure by the patients' family.
  
  
  METHODS
  The relatives of patients with PEG were interviewed by telephone, using a structured questionnaire. They (n = 55; 36% spouses, 34% children, 30% other) gave information about themselves and the patient (34 males, 21 females, median age 69, range 16-92 years) who underwent PEG tube placement for eating disorders or dysphagia.
  
  
  RESULTS
  At the time of evaluation 30/55 (54.6%) patients had died. The cumulative median survival was significantly longer in patients younger than 75 years by 58 days (p = 0.009). Relatives believed that PEG could improve the patients' quality of life (56%) or/and the underlying disease. Although 93% of the decision-makers considered that their opinion had been taken into account when the procedure was done, 25% said that they had not adequately been informed about alternative methods and the complications of the procedure (38%). 54% said that the procedure had improved the quality of life of the family. Most of the decision-makers believed that their decision was correct (87%) and they would recommend PEG (84%) to other patients suffering from dysphagia.
  
  
  CONCLUSIONS
  Though several decision-makers were not satisfied with the quality of information given before informed consent, the overall acceptance of the PEG placement for nutritional support is high.
authors.affiliation: Gastroenterology Unit, 2nd Department of Internal Medicine, Athens University, Evangelismos Hospital, Greece. sdladas@hol.gr
authors.forename: S D
authors.initials: SD
authors.lastname: Ladas
authors.forename: K
authors.initials: K
authors.lastname: Triantafyllou
authors.forename: I
authors.initials: I
authors.lastname: Liappas
authors.forename: M
authors.initials: M
authors.lastname: Hatziargyriou
authors.forename: E
authors.initials: E
authors.lastname: Tzavellas
authors.forename: C
authors.initials: C
authors.lastname: Barbatzas
authors.forename: G
authors.initials: G
authors.lastname: Christodoulou
authors.forename: S A
authors.initials: SA
authors.lastname: Raptis
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003142:Communication; D003657:Decision Making; D004724:Endoscopy; D004750:Enteral Nutrition / Q000941:ethics; D005260:Female; D005774:Gastrostomy / Q000941:ethics; D006801:Humans; D007258:Informed Consent; D008297:Male; D008875:Middle Aged; D011368:Professional-Family Relations; D012189:Retrospective Studies