title: Beliefs about feeding practices and nutrition for children with disabilities among families in Dharavi, Mumbai.
abstract: Attitudes arise from specific experiences and emotions driven by cultural beliefs. An understanding of societal constructs regarding disability in a given culture contributes to developing strategies to meet the needs of children with disabilities by providing culturally competent services. In 1999, a series of focus-group discussions were conducted with families in a low-income community in Mumbai, India to collect qualitative information on the knowledge, skills and attitudes (KSA) regarding disability, feeding and nutrition to facilitate the development of an intervention to improve the nutritional well-being of children with disabilities. The KSA of this population of poor families has seldom been directly examined. The specific objectives of this study were (i) to describe the experiences of families with young disabled children in the local community; (ii) to identify the nutritional and feeding needs of children with disabilities; and (iii) to identify any service, environmental or attitudinal barriers to acquiring an adequate nutritional status. Content analysis of concepts in the focus groups identified four emerging themes: (i) acceptance of disability; (ii) services and needs; (iii) future; and (iv) food and nutrition. The focus-group findings enabled a broader understanding of attitudes towards disability within this population, which can have an impact on the care of the child. The findings provided insights into the content of the intervention to be helpful for local families incorporating an understanding of the cultural background of the local community that must be included alongside our understanding of the feeding impairment.
authors.affiliation: Centre for International Child Health, Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, UK. A.Yousafzai@ich.ucl.ac.uk
authors.forename: Aisha K
authors.initials: AK
authors.lastname: Yousafzai
authors.forename: Sunita
authors.initials: S
authors.lastname: Pagedar
authors.forename: Sheila
authors.initials: S
authors.lastname: Wirz
authors.forename: Suzanne
authors.initials: S
authors.lastname: Filteau
mesh_terms: D000223:Adaptation, Psychological; D002648:Child; D015362:Child Nutrition Disorders / Q000517:prevention & control*; D002664:Child Nutritional Physiological Phenomena; D003469:Culture; D019988:Children with Disabilities / Q000534:rehabilitation*; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice; D006301:Health Services Needs and Demand; D006801:Humans; D007194:India; D010290:Parents / Q000523:psychology; D011204:Poverty Areas