title: Daily struggles: living with long-term childhood technology dependence.
abstract: With advances in technology, children with chronic illnesses are surviving longer. This improved survival rate has resulted in a growing population of families caring for their children with complex needs at home. This grounded theory study explored how caring for a child who requires home ventilation affects family members. Families moved through a process of struggling daily as they cared for their child with complex needs. This ongoing struggle was characterized by three distinct dimensions: getting over the hump, starting to breathe, and having to deal with a subsequent event. Implications for practice and future directions for nursing research are discussed.
authors.affiliation: School of Nursing, McGill University, Montreal, Quebec, Canada.
authors.forename: Eren
authors.initials: E
authors.lastname: Alexander
authors.forename: Janet E
authors.initials: JE
authors.lastname: Rennick
authors.forename: Franco
authors.initials: F
authors.lastname: Carnevale
authors.forename: Michael
authors.initials: M
authors.lastname: Davis
mesh_terms: D000223:Adaptation, Psychological; D002648:Child; D002908:Chronic Disease / Q000628:therapy*; D005190:Family / Q000523:psychology*; D018575:Home Care Services, Hospital-Based; D006801:Humans; D011792:Quebec; D012121:Respiration, Artificial