title: Health care decision-making by adults with mental retardation.
abstract: Abilities of adults with mild, moderate, or no mental retardation to understand hypothetical treatments was investigated using the Assessment of Consent Capacity-Treatment developed for this study based on Appelbaum and Roth's psycholegal consent standards. Performance in all groups decreased with increasing psycholegal complexity of consent decision-making. Most adults with mild and no mental retardation and almost half of adults with moderate mental retardation were able to make and justify treatment choices and fully or partially understand treatment information. Most adults without mental retardation, 50% with mild, and 18% with moderate mental retardation were able to partially appreciate relevance of treatment choice to patient's situation and weigh treatment risks against benefit. Implications of findings for patient rights are discussed.
authors.affiliation: Developmental Disabilities Project, Fordham University Center for Ethics Education, Department of Psychology, Bronx, NY 10458, USA. Cea@Fordham.edu
authors.forename: Christine D
authors.initials: CD
authors.lastname: Cea
authors.forename: Celia B
authors.initials: CB
authors.lastname: Fisher
mesh_terms: D000328:Adult; D000368:Aged; D003657:Decision Making; D005260:Female; D015438:Health Behavior; D006801:Humans; D007258:Informed Consent / Q000523:psychology*; D008607:Intellectual Disability; D008297:Male; D016743:Mental Competency; D008875:Middle Aged; D010342:Patient Acceptance of Health Care