title: Assessing the unmet information, support and care delivery needs of men with prostate cancer.
abstract: This study identified the key Unmet Needs of men with localized prostate cancer. A series of Nominal Groups were used to identify needs, from which a 135-item survey was developed to assess both the Importance and Unmet Need of each item. An Importance-Weighted Unmet Need score was calculated for each item, incorporating both the Importance and the degree to which the need was unmet. Surveys (n=500) were distributed in four geographically distinct areas, with a response rate of 46%. Respondents were 90% Caucasian, 80% married, with a mean age of 66 years, and mean education of 14 years. Care delivery needs were most important and least unmet, while Support needs were least important and most unmet. However, when degree to which needs were unmet was weighted by Importance, information needs had the highest Importance-Weighted Unmet Need scores. The greatest Unmet Needs for information were in knowledge of recurrence issues and in side effects of the illness and its treatment.
authors.affiliation: Center for Health Systems Research and Analysis, University of Wisconsin-Madison, 1119 WARF, 610 Walnut Street, Madison, WI 53705, USA.
authors.forename: Eric W
authors.initials: EW
authors.lastname: Boberg
authors.forename: David H
authors.initials: DH
authors.lastname: Gustafson
authors.forename: Robert P
authors.initials: RP
authors.lastname: Hawkins
authors.forename: Kenneth P
authors.initials: KP
authors.lastname: Offord
authors.forename: Courtney
authors.initials: C
authors.lastname: Koch
authors.forename: Kuang-Yi
authors.initials: KY
authors.lastname: Wen
authors.forename: Kendra
authors.initials: K
authors.lastname: Kreutz
authors.forename: Andrew
authors.initials: A
authors.lastname: Salner
mesh_terms: D000368:Aged; D004644:Emotions; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D020380:Needs Assessment; D010353:Patient Education as Topic; D011471:Prostatic Neoplasms / Q000150:complications / Q000523:psychology* / Q000628:therapy; D011788:Quality of Life; D012944:Social Support; D011795:Surveys and Questionnaires