title: The cultural differences in perceived value of disclosure and cognition: Spain and Canada.
abstract: A previous multicentre international study on sedation at the end of life has detected major differences between Canadian and Spanish patients. This was particularly evident in the need to sedate Spanish patients for psychological/existential distress. This study was designed to explore the hypothesis that marked differences in the value patients and families attach to disclosure and cognition were a factor. The study population included patients referred to two palliative care consulting services based in acute care hospitals in Madrid, Spain (M), and in Edmonton, Canada (E). Questions addressed the issue of clear thinking, pain/nausea-medication-induced somnolence/confusion, anxiety/antidepressant-medication-induced somnolence/confusion, details of diagnosis. One hundred patients were evaluated on each site. Patients and families in E placed a higher value on clear thinking, change in medication causing somnolence/confusion, and wanting full disclosure. Patients and families in E agreed almost 100% of the time, while agreement in M varied from 42% to 67%. These results suggest major differences in the perceived value of clear cognition and disclosure of information between patients and families in E and M. The lack of agreement between patients and families in M is a further significant factor that may complicate communication with patients and families, as well as medical management.
authors.affiliation: Division of Palliative Care Medicine, Department of Oncology, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Robin L
authors.initials: RL
authors.lastname: Fainsinger
authors.forename: Juan M
authors.initials: JM
authors.lastname: Núñez-Olarte
authors.forename: Donna M
authors.initials: DM
authors.lastname: Demoissac
mesh_terms: D000368:Aged; D001294:Attitude to Health; D002170:Canada / Q000208:ethnology; D003071:Cognition; D003466:Cultural Characteristics; D005190:Family / Q000523:psychology; D005260:Female; D006801:Humans; D008297:Male; D010166:Palliative Care / Q000941:ethics*; D010361:Patients / Q000523:psychology; D010465:Perception; D013030:Spain / Q000208:ethnology; D011795:Surveys and Questionnaires; D014342:Truth Disclosure