title: The lived experience of having a neobladder.
abstract: The purpose of this phenomenological qualitative study was to describe the lived experience of people who had a neobladder constructed. Men and women with direct and personal knowledge of the experience were interviewed. Analyses of transcribed verbatim narratives were conducted. Major and minor themes with clustered subthemes were identified. Selected themes included diagnosing cancer, detesting the idea of the bag, coping with stressful events, managing tubes and drains, responding to incontinence, keeping the neobladder healthy, and seeing cancer as a lifelong threat.
authors.affiliation: Nursing Certificate and Distributive Learning Programs, La Salle University, Philadelphia, Pennsylvania, USA.
authors.forename: Janice M
authors.initials: JM
authors.lastname: Beitz
authors.forename: Patti Rager
authors.initials: PR
authors.lastname: Zuzelo
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000368:Aged; D001294:Attitude to Health; D003672:Defecation; D005260:Female; D006801:Humans; D008016:Life Change Events; D008297:Male; D008875:Middle Aged; D010149:Postoperative Pain / Q000150:complications; D019651:Plastic Surgery Procedures / Q000295:instrumentation / Q000523:psychology*; D015203:Reproducibility of Results; D012725:Sexual Behavior; D012907:Smoking; D013312:Stress, Physiological / Q000150:complications; D011795:Surveys and Questionnaires; D001743:Urinary Bladder / Q000002:abnormalities / Q000601:surgery*; D001749:Urinary Bladder Neoplasms / Q000150:complications / Q000523:psychology / Q000601:surgery*; D014546:Urinary Catheterization; D014549:Urinary Incontinence / Q000150:complications