Genetics, parenting, and children's rights in the twenty-first century.
Not only do genetic traits sometimes translate into physical and mental illnesses, they may also manifest themselves as tendencies towards certain behaviours. This discovery has led to the misinterpretation and misapplication of genetic information, and has been directed to unforeseen uses, from criminal defence to genetic racism. The issue is especially sensitive when deciding if and when parents should have access to the genetic information of their children. The author begins with an overview of the principles of behavioural genetics and types of behaviour currently under study. Next, the social and psychological risks associated with genetic testing are presented, along with guidelines necessary to distinguish between testing which is therapeutic and that which is non-therapeutic. The distinction is a crucial one, as the author proposes a therapeutic-benefit test, advocating testing only where an effective intervention is available. Finally, the author concludes that legislation is the more appropriate medium for defining the extent of parental rights once intervention is allowed rather than leaving physicians to decide on a case-by-case basis.
Florencio
P S
PS
Faulty of Law, McGill University, Canada.
D017668:Age of Onset; D026686:Beneficence; D002170:Canada; D002648:Child; D002651:Child Advocacy; D003657:Decision Making; D005195:Family Relations; D033141:Genetic Determinism; D005818:Genetic Engineering / Q000009:adverse effects / Q000941:ethics* / Q000592:standards*; D020022:Genetic Predisposition to Disease; D030661:Genetic Privacy / Q000331:legislation & jurisprudence; D005820:Genetic Testing / Q000941:ethics* / Q000592:standards*; D005824:Genetics, Behavioral; D017408:Guidelines as Topic; D006801:Humans; D033242:Minors; D010290:Parents; D019836:Preimplantation Diagnosis / Q000941:ethics / Q000592:standards; D011287:Prejudice; D011296:Prenatal Diagnosis / Q000941:ethics / Q000592:standards; D017009:Professional Autonomy; D011640:Public Policy; D018570:Risk Assessment