Barriers to home care and social support for an adolescent with disability.
Home care for children with disability has expanded in the last twenty years in order to support the child and family at home and avoid hospitalization or long term care facilities. A case story is presented to show several barriers to home care for a 15 year old boy with Hunter's syndrome and severe disability. The case showed a need for further education and coordination of professionals in order for pediatric home care to be more efficient and supportive in Israel.
Vardi
Gideon
G
Zusman Child Development Center, Soroka University Medical Center, National Institute of Child Health and Human Development, Division for Community Health, Ben Gurion University, Beer-Sheva, Israel. GideonVa@clalit.org.il
Merrick
Joav
J
D000223:Adaptation, Psychological; D000293:Adolescent; D006233:Persons with Disabilities / Q000523:psychology / Q000534:rehabilitation*; D006699:Home Care Services / Q000458:organization & administration*; D006801:Humans; D007557:Israel; D008297:Male; D016532:Mucopolysaccharidosis II / Q000523:psychology / Q000534:rehabilitation*; D011369:Professional-Patient Relations; D012426:Russia / Q000208:ethnology; D012944:Social Support; D012947:Social Work / Q000379:methods