The impact of Internet access for people with spinal cord injuries: a descriptive analysis of a pilot study.
OBJECTIVE
A pilot study was undertaken regarding the effect of Internet access on health-related quality of life (HRQoL) and self-reported impact for people with spinal cord injuries (SCI). This study is unique in providing free Internet access and looking at benefits for people with disabilities.


METHODS
HRQoL was measured using indicators of global health and social isolation at baseline and after 6 to 19 months of use via telephone interviews on a convenience sample of 23 adults with SCI. Additionally, monthly telephone surveys measured usage patterns, recreation, and self-reported impact. Both quantitative and qualitative analyses were conducted. Bivariate tests for differences in proportions and paired T-tests were conducted. Qualitatively, conceptual categories of impact were created using the Constant Comparative Method.


RESULTS
Qualitatively, the predominant benefit was quality of life, mentioned by 61% of participants 46% of months surveyed, with quantitative trends towards improved emotional health. Ease of access to information, social connection, and quality of information were also frequently reported, with modest support from quantitative data.


CONCLUSIONS
The study's persuasive qualitative results suggest the Internet has particular benefit to people with disabilities and that rehabilitation goals should include leisure. Further scientific research is strongly warranted.
Center for Health Quality, Outcomes and Economic Research, Bedford, MA 01730, USA. bvergo@bu.edu
Bethlyn Vergo
BV
Houlihan
Mari-Lynn
ML
Drainoni
Grace
G
Warner
Shanker
S
Nesathurai
Jane
J
Wierbicky
Steven
S
Williams
D000293:Adolescent; D000328:Adult; D003194:Computer-Assisted Instruction; D006233:Persons with Disabilities / Q000193:education* / Q000534:rehabilitation; D005260:Female; D006801:Humans; D020407:Internet; D008297:Male; D008404:Massachusetts; D008875:Middle Aged; D010865:Pilot Projects; D036301:Qualitative Research; D011788:Quality of Life; D012237:Rhode Island; D013119:Spinal Cord Injuries / Q000523:psychology / Q000534:rehabilitation*