Life and health insurance behaviour of individuals having undergone a predictive genetic testing programme for hereditary non-polyposis colorectal cancer.
OBJECTIVE
We describe the insurance behaviour of subjects (n=271) who had previously taken a predictive genetic test for hereditary non-polyposis colorectal cancer (HNPCC); 31% of them were mutation positive, indicating a high risk of cancer. One year after testing, subjects were sent a questionnaire including questions about their present life and health insurance before participation in the study, and their actual and planned purchase of the insurance policies during the testing programme which compromised a pre-test counseling session, a period for reflection, the testing, and a test disclosure session.


RESULTS
Thirty percent reported that they already had a life insurance and 14% a health insurance before participating in the study. The mutation-positive subjects possessed a health insurance significantly more often than the mutation-negative individuals (21 vs. 11%, p=0.02) and similar trend was observed for life insurance (36 vs. 28%, p=0.12). Life and health insurance policies purchased just before testing was reported by 3 and 2% of the subjects, respectively. Life and health insurance policies purchased after testing were reported by 3 and <1% respectively, and planned purchase by 3 and 2%, respectively. No statistically significant differences were found between the groups defined by mutation status in reports of life or health insurance behaviour during or after the programme.


CONCLUSIONS
According to self-reported data, the mutation-positive subjects did not differ from the others in the purchase of life or health insurance policies. However, the mutation-positive individuals reported that they possessed health insurance policies before entering the study more often than their counterparts.
Aktan-Collan
Katja
K
Department of Medical Genetics, Family Federation of Finland, PO Box 849, FIN-00101 Helsinki (Finland). katja.aktan@vaestoliitto.fi
Haukkala
Ari
A
Kaariainen
Helena
H
D003123:Colorectal Neoplasms, Hereditary Nonpolyposis / Q000235:genetics; D005387:Finland; D005817:Genetic Counseling; D020022:Genetic Predisposition to Disease; D005820:Genetic Testing; D006801:Humans; D007348:Insurance, Health / Q000706:statistics & numerical data*; D007352:Insurance, Life / Q000706:statistics & numerical data*; D009154:Mutation / Q000235:genetics; D011287:Prejudice; D011795:Surveys and Questionnaires