[Medical care and support in school and community life to very severe neurologically-impaired children--advance and problems in medical, educational and social management for improvement of QOL].
With an increasing number of children with severe neurological impairment living in their houses, there is growing demand for medical care and support in school and community life. In such cases, respiratory disorder, gastro-esophageal reflux and dysphagia are closely related. To improve these disorders, appropriate rehabilitation and daily managements, such as posture control, are important as well as medical and surgical treatment. Social and educational support is also necessary for improvement of the QOL of these children and their family. For example, daily medical care such as tube feeding and sputum suctioning should be provided by school staffs. Pediatric neurologists should actively participate in such educational and social activities.
Kitazumi
Eiji
E
Department of Pediatrics, National Rehabilitation Center for Disabled Children, Tokyo. kitazumi@mail.ryouiku.or.jp
D002547:Cerebral Palsy / Q000534:rehabilitation*; D002648:Child; D002675:Child, Preschool; D003153:Community Health Services; D003680:Deglutition Disorders / Q000628:therapy; D003695:Delivery of Health Care; D019988:Children with Disabilities; D004519:Education, Special; D004750:Enteral Nutrition; D005767:Gastrointestinal Diseases / Q000628:therapy; D006801:Humans; D011788:Quality of Life; D012120:Respiration Disorders / Q000628:therapy; D012944:Social Support