title: Legal, financial, and ethical ambiguities for Mexican American families: caring for children with chronic conditions.
abstract: The author reports findings from a study about experiences of 17 Mexican American families caring for children with serious chronic conditions. Legal, financial, and ethical ambiguities arose when parents' desire to provide necessary care for their children and providers' professional commitment to offer this care conflicted with United States laws, including welfare reform initiatives, requiring providers to determine eligibility before providing care to immigrants and to report undocumented care seekers to authorities. Families frequently felt intimidated because health care systems are complex, and legal residency status often varied among family members. Findings imply that official policy and education of family members should aim to assure that children with chronic conditions receive needed services without relying on providers to enforce immigration laws.
authors.affiliation: University of New Mexico, Albuquerque, USA.
authors.forename: Roberta S
authors.initials: RS
authors.lastname: Rehm
mesh_terms: D017028:Caregivers / Q000191:economics / Q000331:legislation & jurisprudence; D002648:Child; D002662:Child Health Services / Q000191:economics / Q000331:legislation & jurisprudence; D002908:Chronic Disease / Q000191:economics / Q000451:nursing*; D019988:Children with Disabilities; D004641:Emigration and Immigration / Q000331:legislation & jurisprudence*; D006297:Health Services Accessibility / Q000191:economics / Q000331:legislation & jurisprudence; D006801:Humans; D017058:Mexican Americans; D012067:Religion; D014481:United States