title: Influence of macrostructure of society on the life situation of families with a child with intellectual disability: Sweden as an example.
abstract: BACKGROUND
  Most studies on families with children with intellectual disability (ID) have been carried out in the UK or the USA, and are influenced by the societal organization, and political and economic climate of those countries. In the USA and the UK, the care and well-being of children, with or without ID, are seen almost exclusively as the individual family's responsibility. In Sweden, the care and well-being of children are seen more as a joint responsibility. Swedish society has developed many privileges for all parents in order to help them care for their children, and the support for parents of children with disabilities is provided exclusively by the Government and the community. The overall question explored in this descriptive, quantitative and qualitative study was: Are families in Sweden experiencing the stressors and life situations described in the studies of parents in more individualistic societies?
  
  
  METHODS
  Two hundred and twenty-six families with children with ID and 234 control families with children ranging from 0 to 16 years of age answered mail surveys.
  
  
  RESULTS
  Taken together, parents in Sweden describe most of the stressors proposed in the international literature with the exception of financial strain. Restricted social life and time restrictions seem to be the two most evident and bothersome stressors for Swedish families with children who have ID.
  
  
  CONCLUSIONS
  As in previous research, the parents of children with ID and autism experienced more stressors and restrictions in their lives than the parents of children with DS and control families.
authors.affiliation: Department of Psychology, Göteborg University, Göteborg, Sweden. olsson@psy.gu.se
authors.forename: M B
authors.initials: MB
authors.lastname: Olsson
authors.forename: P C
authors.initials: PC
authors.lastname: Hwang
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D019988:Children with Disabilities; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D007223:Infant; D008607:Intellectual Disability; D008016:Life Change Events; D008297:Male; D012944:Social Support; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D013548:Sweden