Brain donation for schizophrenia research: gift, consent, and meaning.
The Neuroscience Institute of Schizophrenia and Allied Disorders's (NISAD) "Gift of Hope" Tissue Donor Program is a volunteer programme for people who wish to donate their brain when they die for neuroscience research into schizophrenia. Organ donation for purposes of research differs from transplant donation in a number of ways, most notably the absence of a single recipient. Within a particular community, however, (people with schizophrenia and their carers) the single recipient is replaced by a sense of shared experience and preventing suffering in others. Donors have an investment in the research.
Boyes
M
M
Neuroscience Institute of Schizophrenia and Allied Disorders (NISAD), 384 Victoria Street, Darlinghurst, NSW 2010, Australia. m.boyes@nisad.org.au
Ward
P
P
D000533:Altruism; D001315:Australia; D001921:Brain; D032984:Ethics, Research; D005190:Family; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D026684:Personal Autonomy; D012559:Schizophrenia; D009927:Tissue and Organ Procurement / Q000941:ethics*