title: Living with lung disease.
abstract: Pauline Adam is a 42-year-old former nurse and mother of one. She has a genetic lung condition called Alpha-1-Antitrypsin Deficiency (A1AD). This condition is rare, affecting about one in 3,000 people in the UK. Ms Adam lives in Edinburgh and is a long-time supporter of the British Lung Foundation (BLF). She is a former organiser of her local BLF Breathe Easy support group, but is currently not well enough to attend group meetings. She is mostly confined to a wheelchair and is reliant on constant oxygen therapy.
authors.forename: Rachelle
authors.initials: R
authors.lastname: Laurence
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D005260:Female; D006801:Humans; D012648:Self Care / Q000379:methods* / Q000523:psychology; D012657:Self-Help Groups / Q000458:organization & administration*; D019896:alpha 1-Antitrypsin Deficiency / Q000503:physiopathology / Q000517:prevention & control* / Q000523:psychology*