title: Keeping cancer patients informed: a challenge for nursing.
abstract: The aim of this study was to find out how much information cancer patients feel they get from nurses and physicians; how that information is provided; and what other sources patients use in their search for information. Also, the meaning of information was surveyed. The sample comprised 273 cancer patients. Data were collected with a questionnaire specifically developed for this research. Descriptive statistics and non-parametric tests were used for statistical analyses. The results indicated that there is still much to do when it comes to informing cancer patients. Around half of the respondents had not received enough information about the prognosis, the alternatives of treatment and the effects of cancer or treatment. The provision of written information by staff was regarded as insufficient. Leaflets of cancer and related issues were the most popular source of additional information. The length of time since diagnosis, employment status, physical condition and mood had the strongest associations with patients receiving or searching for information. Most respondents wanted information because it had a positive impact on their feelings and attitudes and it helped them to cope with their situation.
authors.affiliation: Health Care Region of Helsinki and Uusimaa, HUCH Cancer Center, PL 180, FIN-00029 HYKS, Helsinki, Finland. toppari.sainio@pp.inet.fi
authors.forename: Carita
authors.initials: C
authors.lastname: Sainio
authors.forename: Elina
authors.initials: E
authors.lastname: Eriksson
mesh_terms: D000328:Adult; D000368:Aged; D005260:Female; D005387:Finland; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009369:Neoplasms / Q000175:diagnosis / Q000451:nursing* / Q000628:therapy; D024802:Nurse's Role; D009723:Nurse-Patient Relations; D009859:Oncology Nursing / Q000379:methods*; D033283:Patient Access to Records; D010353:Patient Education as Topic / Q000379:methods; D017060:Patient Satisfaction; D011336:Probability; D012494:Sampling Studies; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires; D014342:Truth Disclosure