title: The experience of waiting and life during breast cancer follow-up.
abstract: Much research exists on quality of life issues with breast cancer survivors. However, there has been little done on the waiting experience itself, and on the experience of follow-up from the women's perspective. Women who have been diagnosed and treated for breast cancer live with the condition for a minimum of 5 years, waiting for the next medical intervention; waiting for the next battery of tests; waiting for the next physician check-up. Throughout most of these years they may feel healthy, but they experience visits to cancer clinics, medical testing, and physician interactions. Women's accounts of their experiences of waiting and life during follow-up for breast cancer has not been the focus of research on the quality of life of breast cancer survivors. In particular research that uses a qualitative approach, in which women recount their experiences in their own language, has been missing. This study used a phenomenological approach, telling the stories of waiting and life throughout follow-up of nine women. The women's experiences are captured in four themes: life-changing; a sense of belonging; uncertainty; needing to know.
authors.affiliation: School of Nursing, Memorial University of Newfoundland, St. John's, Newfoundland. agaudine@mun.ca
authors.forename: Alice
authors.initials: A
authors.lastname: Gaudine
authors.forename: Marilyn
authors.initials: M
authors.lastname: Sturge-Jacobs
authors.forename: Mary
authors.initials: M
authors.lastname: Kennedy
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D000359:Aftercare / Q000523:psychology*; D001294:Attitude to Health; D001943:Breast Neoplasms / Q000523:psychology*; D002170:Canada; D005260:Female; D006801:Humans; D008016:Life Change Events; D008875:Middle Aged; D015404:Nursing Methodology Research; D010353:Patient Education as Topic; D036301:Qualitative Research; D011788:Quality of Life; D012649:Self Concept; D012803:Sick Role; D012944:Social Support; D011795:Surveys and Questionnaires; D017741:Survivors / Q000523:psychology*; D013997:Time Factors; D014930:Women / Q000523:psychology*