title: Establishing nursing research priorities on a paediatric haematology, oncology, immunology and infectious diseases unit: involving doctors and parents.
abstract: Following a Delphi survey undertaken with nurses on a specialist children's unit to identify priorities for nursing research, this paper outlines the results of a survey to ascertain the views of doctors and parents regarding the results of the Delphi. This approach was in keeping with national guidance on multi-professional working in paediatric oncology and the importance of service-user involvement in planning and evaluating care. Convenience samples of doctors (n=16) and parents (n=10) were asked to rank the priorities previously identified by nurses. Results highlighted that in the main, nurses, doctors and parents agreed on the key areas that should take priority for research. Nurse's knowledge of day-to-day symptom management, children's quality of life, negotiation and communication in relation to care provision were identified by all three groups as high priorities. There were some areas where the views varied: this was generally in relation to the different primary focus of the individual groups-parents being very concerned with the effect of daily ward routines and procedures and their child's overall hospital experience, nurses with issues such as staff retention and morale, whereas doctors were more concerned with issues around information giving and consent to treatment. Limitations of the study, including sample selection and the transient nature of the population involved are discussed within the paper. The paper concludes that all three groups shared similar views, being focused on issues directly related to patient care. Consensus between the groups should result in future research initiatives reflecting a shared focus and responding to an identified need.
authors.affiliation: Children's Services, McElwain Ward, The Royal Marsden Hospital, Downs Road, Sutton, Surrey SM2 5PT, UK. louise.soanes@rmh.nthames.nhs.uk
authors.forename: Louise
authors.initials: L
authors.lastname: Soanes
authors.forename: Faith
authors.initials: F
authors.lastname: Gibson
authors.forename: Julia
authors.initials: J
authors.lastname: Hannan
authors.forename: Julie
authors.initials: J
authors.lastname: Bayliss
mesh_terms: D001291:Attitude of Health Personnel; D002648:Child; D002675:Child, Preschool; D015400:Clinical Nursing Research / Q000592:standards* / Q000639:trends; D003141:Communicable Diseases / Q000451:nursing; D003697:Delphi Technique; D005260:Female; D019337:Hematologic Neoplasms / Q000451:nursing; D006757:Hospital Units; D006801:Humans; D007154:Immune System Diseases / Q000451:nursing; D007400:Interprofessional Relations; D008297:Male; D008495:Medical Oncology; D009859:Oncology Nursing / Q000592:standards*; D010372:Pediatrics / Q000592:standards; D010818:Practice Patterns, Physicians'; D006113:United Kingdom