title: Participation and satisfaction with surgical treatment decision-making in breast cancer among Chinese women.
abstract: OBJECTIVE
  To report Chinese women's preferred and perceived participation in breast cancer treatment decision making (TDM), describe influences on women's participation preference and participation congruence (PC) (correspondence between preferred and actual amount of participation in TDM), and explore subsequent satisfaction with TDM.
  
  
  METHODS
  Of 172/211 eligible and available Chinese women recently undergoing breast cancer surgery at one of six Hong Kong government hospitals 154 (89.5%) were recruited. Within 12 days after surgery, women provided interview information on preferred and perceived TDM participation, satisfaction with TDM consultation, difficulties in TDM, and medical and demographic information.
  
  
  RESULTS
  Half (55%) reported a treatment choice: 33% wanted the choice to be their own, 59% wanted to share and 8% wanted to delegate the decision. Only age predicted participation preference with older women preferring a more passive role. Eighty percent of women participated as much as, 13% more than and 6% less than desired. Adjusted for age, women reporting PC had fewer difficulties in TDM (beta = 0.21, p = 0.009) than women not reporting PC, while over-involved women had more doubts about their choice (beta = -0.23, p = 0.005). PC was associated with being offered a treatment option (chi2 = 15.59, p < 0.001) and surgeons expressing a surgical preference (chi2 = 6.63, p = 0.036). Satisfaction was unrelated to PC.
  
  
  CONCLUSIONS
  Most Chinese women want shared TDM and to know their surgeon's treatment preference. Over-involved women are at greater risk of difficulties and doubts in TDM and under-involved women perceive a lack of time and information to make their decision.
authors.affiliation: Center for Psycho-Oncology Research and Teaching, Department of Community Medicine, University of Hong Kong, Pokfulam, Hong Kong SAR, China.
authors.forename: Wendy
authors.initials: W
authors.lastname: Lam
authors.forename: Richard
authors.initials: R
authors.lastname: Fielding
authors.forename: Miranda
authors.initials: M
authors.lastname: Chan
authors.forename: Louis
authors.initials: L
authors.lastname: Chow
authors.forename: Ella
authors.initials: E
authors.lastname: Ho
mesh_terms: D000328:Adult; D000368:Aged; D044466:Asian People; D001943:Breast Neoplasms / Q000188:drug therapy / Q000208:ethnology / Q000601:surgery*; D003657:Decision Making; D005260:Female; D006723:Hong Kong; D006801:Humans; D007407:Interviews as Topic; D008875:Middle Aged; D010353:Patient Education as Topic; D010358:Patient Participation; D017060:Patient Satisfaction / Q000208:ethnology*; D016387:Women's Health