title: Wanted: a national standard for early hearing detection and intervention outcomes data.
abstract: The Joint Committee on Infant Hearing (JCIH, 2000) has presented principles and guidelines for universal newborn hearing screening and early hearing detection and intervention (EHDI). The guidelines describe the need for a national data set for early hearing detection and intervention. The guidelines fail to provide the specific constructs for such a data set. To the authors' knowledge, no nationally proposed uniform data structure exists to capture EHDI services' outcome metrics. This article presents a proposed newborn hearing screening and EHDI data model. This model was developed to record EHDI outcomes data from Military Health System birthing centers. The data are to be collected for tracking implementation of Healthy People 2010 goals related to newborn hearing screening and EHDI programs within the Military Health System. In this article, the authors use the T. Helfer, A. Shields, and K. Gates (2000) methods to model a uniform structure for collection of newborn hearing screening and EHDI data. They also discuss expansion of the data model for application to public health reporting of EHDI outcomes in the civilian sector to include integration of Census Bureau demographic data and geographic information system data to further enhance the research value of these EHDI outcomes data. They offer the data model with the intention of supporting national research efforts for studying the efficacy of EHDI programs and to help establish a national evidence-based practice database for such programs.
authors.affiliation: U.S. Army Center for Health Promotion and Preventive Medicine, Edgewood, MD, USA. Thomas.Helfer@amedd.army.mil
authors.forename: Thomas M
authors.initials: TM
authors.lastname: Helfer
authors.forename: Robyn B
authors.initials: RB
authors.lastname: Lee
authors.forename: Dorina C
authors.initials: DC
authors.lastname: Maris
authors.forename: Anne R
authors.initials: AR
authors.lastname: Shields
mesh_terms: D000367:Age Factors; D001298:Audiology / Q000592:standards; D019317:Evidence-Based Medicine; D006311:Hearing Disorders / Q000453:epidemiology* / Q000628:therapy*; D006801:Humans; D007231:Infant, Newborn; D015997:Neonatal Screening; D017063:Outcome Assessment, Health Care; D014481:United States / Q000453:epidemiology