title: Family caregiver knowledge of treatment intent in a longitudinal study of patients with advanced cancer.
abstract: OBJECTIVE
  Caregivers have become part of a triad of care and frequently attend patient consultations in the ambulatory cancer setting. Effective caregiving and decision making require that they understand the course of the disease and the changing treatment goals. This study sought to evaluate caregiver perception of treatment intent.
  
  
  METHODS
  A cohort of 317 subjects (181 patients and 136 caregivers) from The Canberra Hospital's Cancer Services were followed for 6 months. Caregiver understanding of patient treatment intent was measured over time together with sources of information.
  
  
  RESULTS
  Most caregivers understood that the illness was life-threatening (92% at week 12) and that treatment goals were to control illness and improve quality of life. Only half understood that treatment was noncurative (48% at week 12); 27% were unsure and 25% believed that treatment would cure. A high proportion of caregivers identified the specialist as the source of information (77%) and almost half also included the general practitioner (47%). These figures remained fairly constant over time. There were significant gender and age differences in understanding. At baseline, more women than men had an accurate perception of treatment intent and these numbers increased over time. Men's perception did not change.
  
  
  CONCLUSIONS
  Caregivers' ability to fully engage in the task of caring for those with a terminal illness may be hampered by their lack of understanding of the treatment patients receive.
authors.affiliation: The Canberra Hospital, ACT, Australia. kburns@cancersa.org.au
authors.forename: Catherine M
authors.initials: CM
authors.lastname: Burns
authors.forename: Tracy
authors.initials: T
authors.lastname: Dixon
authors.forename: Dorothy
authors.initials: D
authors.lastname: Broom
authors.forename: Wayne T
authors.initials: WT
authors.lastname: Smith
authors.forename: Paul S
authors.initials: PS
authors.lastname: Craft
mesh_terms: D000328:Adult; D017028:Caregivers / Q000523:psychology*; D005190:Family / Q000523:psychology*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D049671:History, 18th Century; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000451:nursing* / Q000523:psychology; D011795:Surveys and Questionnaires