title: Clinical decision-making at the end of life: the role of the patient's wish.
abstract: Information about medical decision-making in the last stage of life and the wishes of terminally ill patients is scarce. At two hospital departments, we observed 16 multidisciplinary meetings and recorded 110 discussions concerning 74 patients. Thirty-three of these discussions concerned either starting or forgoing potentially life-prolonging therapy or applying potentially life-shortening medical interventions. The wishes of the patients were considered in 15 of these discussions. In 6 of these 15 discussions, the patient's wish was unknown. In five discussions the decision was postponed to enable discussions with the patients. Potentially life-shortening decisions were never made if patients were known to disagree. No decisions about physician-assisted death were made. The study shows that medical end-of-life decisions are commonly shared between the involved caregivers and the patients.
authors.affiliation: Helen Dowling Institute, P.O. Box 85061, 3508 AB, Utrecht, The Netherlands. a.visser@hdi.nl
authors.forename: Adriaan
authors.initials: A
authors.lastname: Visser
authors.forename: Anna F
authors.initials: AF
authors.lastname: van Leeuwen
authors.forename: Elsbeth
authors.initials: E
authors.lastname: Voogt
authors.forename: Agnes
authors.initials: A
authors.lastname: van der Heide
authors.forename: Karin
authors.initials: K
authors.lastname: van der Rijt
mesh_terms: D016223:Advance Directives; D000368:Aged; D016638:Critical Illness; D003657:Decision Making; D006801:Humans; D013727:Terminal Care