The role of user representation and Arthritis and Rheumatism International.
Arthritis and Rheumatism International (ARi), founded in 1988, is an association of national lay organizations comprising mainly people whose lives are affected by arthritis and rheumatism. ARi's charter defines the organization's aims, including to raise awareness of the needs of people with arthritis/rheumatism, to improve the quality of their lives through education and self-management programs, and to support research into causes, management, prevention, and cure of arthritis. With the aid of a grant from the Pfizer Foundation in 2002, ARi has been able to further develop into a strong organization throughout the world, with a membership of 22 countries. Successful intitiatives include the People with Arthritis and Rheumatism in Europe Manifesto, which has served as a very effective focus for developing action plans, opening dialogues, building partnerships with other organizations, lobbying governments, and gaining media attention throughout Europe. The manifesto (website: www.PAREmanifesto.org) was developed by ARi working in conjunction with The International Organisation of Youth with Rheumatism and the EULAR Social League. These are examples of initiatives that ARi aims to promote on a global scale in the next few years.
Johnstone
Robert
R
International Organisation of Youth With Rheumatism and the EULAR Social League. robertjohnstone@onetel.net.uk
D003254:Consumer Advocacy / Q000639:trends*; D006265:Health Care Coalitions / Q000458:organization & administration* / Q000639:trends; D006291:Health Policy / Q000331:legislation & jurisprudence / Q000639:trends; D006801:Humans; D007391:International Cooperation; D011641:Public Relations / Q000639:trends; D012216:Rheumatic Diseases / Q000523:psychology* / Q000628:therapy*; D014837:Voluntary Health Agencies / Q000458:organization & administration* / Q000639:trends