Family quality of life: a qualitative inquiry.
In this qualitative inquiry we investigated the conceptualization of family quality of life. Focus groups and individual interviews were conducted with 187 individuals: family members (e.g., parents, siblings) of children with a disability, individuals with a disability, family of children without a disability, service providers, and administrators. Data were collected in urban and rural settings to elicit the participants' understanding of family quality of life. Ten domains of family quality of life were identified and described in terms of subdomains, indicators, and key points raised by participants. Implications are discussed in terms of future directions for research and family support.
Poston
Denise
D
Research Design and Analysis Unit, Life Span Institute, The University of Kansas, Haworth Hall, 1200 Sunnyside Ave., Rm. 3136, Lawrence, KS 66045, USA. denisep@ku.edu
Turnbull
Ann
A
Park
Jiyeon
J
Mannan
Hasheem
H
Marquis
Janet
J
Wang
Mian
M
D000293:Adolescent; D000328:Adult; D002648:Child; D019988:Children with Disabilities / Q000523:psychology*; D005192:Family Health; D005260:Female; D017144:Focus Groups; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D012107:Research Design