Choices and voices: participation of people with HIV on Ryan White Title II Consumer Advisory Boards.
This article presents an assessment of the functioning and training needs of consumer advisory boards in Massachusetts (CABs) who advise the Massachusetts agency and the consortia funded through Title II of the Ryan White Comprehensive AIDS Resources Emergency Act. The study found that the stage agency and the CABs valued the role of consumers in policy making, but the mechanisms for translating this goal into reality were not always clear or available. The CABs wanted more opportunities to interact with HIV/AIDS Bureau staff and with one another. The CAB members expressed need for ongoing training and technical assistance for themselves and for consortia staff. This project was an example of action research, for the purpose of change and mobilization.
Poindexter
Cynthia Cannon
CC
Graduate School of Social Service, Fordham University, North Hall, Room 312, Neperan Road, Tarrytown, NY 10591, USA. poindexter@fordham.edu
Lane
Terry Saunders
TS
D026683:Advisory Committees / Q000458:organization & administration*; D018672:Community Health Planning / Q000458:organization & administration*; D003256:Community Participation; D003299:Cooperative Behavior; D005260:Female; D017144:Focus Groups; D015658:HIV Infections / Q000517:prevention & control*; D018166:Health Care Reform; D006801:Humans; D008297:Male; D008404:Massachusetts; D011050:Policy Making; D015397:Program Evaluation; D012947:Social Work / Q000458:organization & administration*