title: Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study.
abstract: The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.
authors.affiliation: Centre for the Economics of Mental Health, Health Service Research Department, The David Goldberg Centre, Institute of Psychiatry, De Crespigny Park, London SE5 8AF, UK.
authors.forename: Krister
authors.initials: K
authors.lastname: Järbrink
authors.forename: Eric
authors.initials: E
authors.lastname: Fombonne
authors.forename: Martin
authors.initials: M
authors.lastname: Knapp
mesh_terms: D000328:Adult; D001321:Autistic Disorder / Q000191:economics*; D017028:Caregivers / Q000191:economics*; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D003365:Costs and Cost Analysis; D004519:Education, Special / Q000191:economics; D004739:England; D005260:Female; D005382:Financing, Personal / Q000191:economics; D005102:Health Expenditures / Q000706:statistics & numerical data; D006701:Home Nursing / Q000191:economics*; D006801:Humans; D008297:Male