title: Family quality of life: a qualitative inquiry.
abstract: In this qualitative inquiry we investigated the conceptualization of family quality of life. Focus groups and individual interviews were conducted with 187 individuals: family members (e.g., parents, siblings) of children with a disability, individuals with a disability, family of children without a disability, service providers, and administrators. Data were collected in urban and rural settings to elicit the participants' understanding of family quality of life. Ten domains of family quality of life were identified and described in terms of subdomains, indicators, and key points raised by participants. Implications are discussed in terms of future directions for research and family support.
authors.affiliation: Research Design and Analysis Unit, Life Span Institute, The University of Kansas, Haworth Hall, 1200 Sunnyside Ave., Rm. 3136, Lawrence, KS 66045, USA. denisep@ku.edu
authors.forename: Denise
authors.initials: D
authors.lastname: Poston
authors.forename: Ann
authors.initials: A
authors.lastname: Turnbull
authors.forename: Jiyeon
authors.initials: J
authors.lastname: Park
authors.forename: Hasheem
authors.initials: H
authors.lastname: Mannan
authors.forename: Janet
authors.initials: J
authors.lastname: Marquis
authors.forename: Mian
authors.initials: M
authors.lastname: Wang
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D019988:Children with Disabilities / Q000523:psychology*; D005192:Family Health; D005260:Female; D017144:Focus Groups; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D012107:Research Design