title: Issues and experience around the Paediatric Register of Inflammatory Bowel Disease.
abstract: Accurate epidemiological data is one of the most important tools to elucidate disease aetiology and natural history. Disease registers are the cornerstone of this process. The importance of registers in facilitating an efficient health service is clear. We have been engaged in the development of a register of paediatric inflammatory bowel diseases, and in this article we present a general overview of registers and of lessons we have learnt along the way.
mesh_terms: D002648:Child; D028741:Ethics Committees, Clinical; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000453:epidemiology*; D007258:Informed Consent; D012042:Registries / Q000941:ethics / Q000592:standards*; D006113:United Kingdom / Q000453:epidemiology