A disease-specific psychosocial questionnaire for Parkinson's disease caregivers.
OBJECTIVE
To evaluate the "Belastungsfragebogen Parkinson Angehörigen-kurzversion" (BELA-A-k), a questionnaire for measuring psychosocial problems and need for help in Parkinson's disease (PD) caregivers.


METHODS
The "Belastungsfragebogen Parkinson Angehörigen-kurzversion" was translated into Dutch. It consists of 15 items with a "Bothered by" (Bb) and a "Need for Help" (NfH) score. The BELA-A-k was tested for cultural differences, relevance and feasibility in a pilot (n = 10). We determined the psychometric properties in a validation study (n = 50) and compared the BELA-A-k with the Sickness Impact Profile, the COOP/WONCA Functional Health Assessment Charts and the Loneliness Questionnaire (de Jong-Gierveld). All questionnaires were administered in person at home, in a prescribed order.


RESULTS
The BELA-A-k was completed by 60 PD-caregivers. The internal-consistency reliability coefficients for the total "Bothered by" (0.90) and "Need for Help" (0.92) scales were excellent. The internal consistency of the subscales exceeded the 0.70 standard except for the "Bothered by" and "Need for Help" Social functioning scale (Bb = 0.62; NfH = 0.65) and the Partner-bonding/Family scale (NfH = 0.69). Almost all BELA-A-k subscales correlated highly (P < 0.001) with the corresponding scales of the standard quality of life indices.


CONCLUSIONS
The BELA-A-k is a relevant, reliable and valid measure for assessing psychosocial problems and need for help of PD-caregivers.
Dept. of Neurology, J3-R Leiden University Medical Centre, P.O. Box 9600, 2300 RC, Leiden, The Netherlands. n.g.a.spliethoff-kamminga@lumc.nl
Noëlle G A
NG
Spliethoff-Kamminga
Aeilko H
AH
Zwinderman
Machiel P
MP
Springer
Raymund A C
RA
Roos
D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000523:psychology*; D003466:Cultural Characteristics; D005260:Female; D006801:Humans; D007802:Language; D008132:Loneliness; D008297:Male; D008603:Mental Health; D008875:Middle Aged; D009426:Netherlands; D010300:Parkinson Disease / Q000628:therapy*; D011594:Psychometrics; D015203:Reproducibility of Results; D012944:Social Support; D011795:Surveys and Questionnaires