The Hungarian HAE experience.
The Hungarian HAE Center was established in 1994, in Budapest. Assignments of the Center include diagnostic work-up of patients with angioedema; developing national guidelines for the recognition, treatment of patients with HAE; maintaining the registry, patient education, supply patients with info-card and C1-INH concentrate, follow-up of patients, telephone 'hot-line' service, under- and postgraduate education as well as pursues scientific activities. Established in 1996, the Hungarian HAE Patients' Association a foundation to support HAE patients; and a Hungarian HAE website. Hungarian HAE Working Group is the main organizer of the European C1-INH Deficiency Workshops to be held at two-year intervals from 1999.
Farkas
Henriette
H
Allergy and Angiooedema Outpatients Clinic, Kútvölgyi Clinical Center, Semmelweis University, Kútvölgyi út 4, H-1125 Budapest, Hungary. farkash@kut.sote.hu
Varga
Lilian
L
D000799:Angioedema / Q000175:diagnosis* / Q000209:etiology / Q000517:prevention & control / Q000628:therapy*; D003174:Complement C1 Inactivator Proteins / Q000172:deficiency / Q000627:therapeutic use*; D003937:Diagnosis, Differential; D004493:Education; D006801:Humans; D006814:Hungary; D012952:Societies
D003174:Complement C1 Inactivator Proteins