Providing services for families with a genetic condition: a contrast between cystic fibrosis and Down syndrome.
Collins
Veronica
V
Murdoch Childrens Research Institute, Department of Paediatrics, University of Melbourne Royal Children's Hospital, Melbourne, VIC 3052, Australia. collinsv@cryptic.rch.unimelb.edu.au
Williamson
Robert
R
D000328:Adult; D003550:Cystic Fibrosis / Q000175:diagnosis / Q000523:psychology / Q000628:therapy; D004314:Down Syndrome / Q000175:diagnosis / Q000523:psychology / Q000628:therapy; D005192:Family Health; D005260:Female; D005820:Genetic Testing; D006295:Health Resources / Q000458:organization & administration*; D006301:Health Services Needs and Demand; D006306:Health Surveys; D006801:Humans; D007231:Infant, Newborn; D009035:Mothers / Q000523:psychology; D015997:Neonatal Screening; D017060:Patient Satisfaction; D011296:Prenatal Diagnosis; D012657:Self-Help Groups; D014481:United States; D014739:Victoria