The nature, meanings, and dynamics of lived experiences of a person with syringomyelia: a phenomenological study.
Syringomyelia, considered a rare neurological disease, is relatively uninvestigated in the nursing literature. The aims of this qualitative phenomenological case study were to discover the nature, meanings, and dynamics of lived experiences of a 52-year-old Caucasian male with syringomyelia. Using van Manen's Method of Phenomenological inquiry (van Manen, 1990), data were collected, checked, and analyzed according to the philosophy, approach, and methodological procedures of phenomenology. Findings revealed an overarching theme of engulfment by disease. Essential themes included loss of abilities, struggles to adapt to changes, and life as a person who was disabled. Eleven sub-themes were also identified. Implications for nursing practice are discussed.
Hilton
Edith L
EL
North Park University, Chicago, Illinois, USA.
Henderson
Lesley J
LJ
D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000786:Anger; D001294:Attitude to Health; D001828:Body Image; D006233:Persons with Disabilities / Q000523:psychology*; D006117:Grief; D006801:Humans; D008016:Life Change Events; D008297:Male; D008571:Men / Q000523:psychology; D008875:Middle Aged; D008960:Models, Psychological; D015404:Nursing Methodology Research; D036301:Qualitative Research; D012649:Self Concept; D012803:Sick Role; D012944:Social Support; D018454:Spouses / Q000523:psychology; D011795:Surveys and Questionnaires; D013595:Syringomyelia / Q000517:prevention & control / Q000523:psychology*