The David Jayne amendment: the story of one man's determination to improve the lives of thousands.
Stricken by ALS at the age of 27, David Jayne slowly lost the ability to walk, to eat, to speak, and to breathe. With the assistance of home health professionals, medical technologies, and volunteers, he has managed to maintain as full a life as possible, participating in some of his children's activities and even managing, with great effort, to attend a football game. However, when he was the subject of a newspaper article, his home health coverage was dropped because he didn't meet the federal definition of "homebound." This is the story of how he took on the political establishment single-handedly, and eventually realized a victory that has the potential of helping thousands of people in similar situations to no longer be imprisoned at home.
Sokol
Eric
E
D000328:Adult; D000690:Amyotrophic Lateral Sclerosis; D005845:Georgia; D049674:History, 21st Century; D018577:Homebound Persons / Q000331:legislation & jurisprudence*; D006801:Humans; D008297:Male; D010344:Patient Advocacy / Q000331:legislation & jurisprudence*; D011788:Quality of Life; D012866:Skilled Nursing Facilities; D012944:Social Support